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Raspa, Melissa; Bann, Carla M.; Gwaltney, Angela; Benke, Timothy A.; Fu, Cary; Glaze, Daniel G.; Haas, Richard; Heydemann, Peter; Jones, Mary; Kaufmann, Walter E.; Lieberman, David; Marsh, Eric; Peters, Sarika; Ryther, Robin; Standridge, Shannon; Skinner, Steven A.; Percy, Alan K.; Neul, Jeffrey L. – American Journal on Intellectual and Developmental Disabilities, 2020
Rett syndrome (RTT) is a neurodevelopmental disorder that primarily affects females. Recent work indicates the potential for disease modifying therapies. However, there remains a need to develop outcome measures for use in clinical trials. Using data from a natural history study (n = 1,075), we examined the factor structure, internal consistency,…
Descriptors: Genetic Disorders, Psychometrics, Psychomotor Skills, Physical Disabilities
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Verdugo, Miguel-Angel; Arias, Benito; Ibanez, Alba; Schalock, Robert L. – American Journal on Intellectual and Developmental Disabilities, 2010
The Supports Intensity Scale (SIS) is used to determine the profile and intensity of the supports needed by a person to participate successfully in major life activities. With its publication into 13 languages, a need has arisen to document its reliability and validity across language and cultural groups. Here we explain the adaptation and the…
Descriptors: Mental Retardation, Validity, Measures (Individuals), Foreign Countries
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Lamoureux-Hebert, Melanie; Morin, Diane – American Journal on Intellectual and Developmental Disabilities, 2009
The Supports Intensity Scale (SIS) was translated into French. The French version was then validated using a sample of 245 persons with intellectual disabilities between the ages of 16 and 75 years. The internal consistency was excellent (0.98). Correlations with age and levels of intellectual disabilities were evidence of good construct validity.…
Descriptors: Mental Retardation, Developmental Disabilities, Construct Validity, Translation
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Davis, Clare; Kellett, Stephen; Beail, Nigel – American Journal on Intellectual and Developmental Disabilities, 2009
The Rosenberg Self-Esteem Scale (RSES) continues to be used to purportedly measure self-esteem of people with intellectual disabilities, despite the lack of sound evidence concerning its validity and reliability when employed with this population. The psychometric foundations of the RSES were analyzed here with a sample of 219 participants with…
Descriptors: Mental Retardation, Measures (Individuals), Psychometrics, Self Esteem