Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…

This case study investigates the practical and methodological challenges associated with conducting interviews with high-ranking public figures ("elites") in politically fragile environments, with a particular focus on education and gender issues in Turkey. The original research utilised a qualitative methodology, emphasising an…

The interview experience is only one component of the process of interviewing -- software programmes can coordinate the pre-interview steps and begin a digitally-mediated relationship with participants long before the actual interview commences. This essay provides examples of how researchers can maximise their time and energy by digitally…

Background: While qualitative research on intellectual disability is on the rise, researchers have frequently reported that their methods bring methodological and ethical challenges. The authors advance shadowing as an alternative method to respond to these concerns. Method: The authors draw on their experiences with shadowing on the basis of two…

In this article, we introduce participant viewpoint ethnography (PVE), a phenomenological video research method that combines reflexive, interview-based data with video capture of actual experiences. In PVE, participants wear a head-mounted camera to record the phenomena of study from their point of view. The researcher and participant then review…

Conducting qualitative research interviews among individuals with intellectual disabilities, including cognitive limitations and difficulties in communication, presents particular research challenges. One question is whether the difficulties that informants encounter affect interviews to such an extent that the validity of the results is weakened.…

Background: With increasing numbers of people with an intellectual disability choosing to become parents, the right support is imperative for effective parenting (Macintyre & Stewart2011]). The aim of this study was to gain insight into the experiences of parents who received support from Doulas during pregnancy, birth and following the birth…

Accountability is a fundamental concept that underpins our approach and expectations of professional practice, though academics have struggled to define what accountability is. In spite of the lack of consensus on a definition for accountability, we have endeavoured to develop our students' understanding of the legal, ethical and professional…

Parents are important stakeholders in their children's special education program, but understanding the special education process can be complicated and overwhelming. Further, it is unclear how parents are informed about procedural safeguards within the process for their children and themselves, the extent of their understanding, and whether and…

Background: Patients with intellectual disabilities (ID) receive health care by proxy. It is family members and/or paid support staff who must recognise health problems, communicate with clinicians, and report the benefits, if any, of a particular treatment. At the same time international and national statutes protect and promote the right of…

Native Americans have been underrepresented in previous studies of biomedical research participants. This paper reports a qualitative interview study of Native Americans' perspectives on biomedical research. In-depth interviews were conducted with 53 members of a Southwest tribal community. Many interviewees viewed biomedical research studies as a…