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Direct linkNelson, Lisa; Moss, Jo; Oliver, Chris – American Journal on Intellectual and Developmental Disabilities, 2014
Studies of individuals with Cornelia de Lange syndrome (CdLS) have described changes in mood and behavior with age, although no empirical or longitudinal studies have been conducted. Caregivers of individuals with CdLS (N = 67), cri du chat syndrome (CdCS; N = 42), and Fragile X syndrome (FXS; N = 142) completed the Mood, Interest and Pleasure…
Descriptors: Longitudinal Studies, Followup Studies, Children, Adults
Lanfranchi, Silvia; Vianello, Renzo – American Journal on Intellectual and Developmental Disabilities, 2012
The present study analyzes differences in parental stress in families of children with Down, Williams, Fragile X, and Prader-Willi syndromes, exploring factors that influence parental stress, such as child's characteristics, parental locus of control, and family cohesion and adaptability. Differences between mothers and fathers are also…
Descriptors: Locus of Control, Mothers, Down Syndrome, Fathers
