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Direct linkDavies, Hugh – Research Ethics, 2022
Consent is one necessary foundation for ethical research and it's one of the research ethics committee's major roles to ensure that the consent process meets acceptable standards. Although on Oxford 'A' REC (an NHS Research Ethics Committee based in the UK) we've been impressed by the thought and work put into this aspect of research ethics, we've…
Descriptors: Ethics, Informed Consent, Research, Foreign Countries
Joyce El-Haddad; Nalini Pather – Anatomical Sciences Education, 2024
The management of human fetal and embryological collections presents an ethical challenge that can be explored from different perspectives, particularly when considering informed consent. The "micro ethics" level focuses on parties engaged in giving and receiving human tissue while the "macro ethics" level focusses on the…
Descriptors: Donors, Ethics, Informed Consent, Human Body
Zeinab Mohammed; Fatma Abdelgawad; Mamoun Ahram; Maha E. Ibrahim; Alya Elgamri; Ehsan Gamel; Latifa Adarmouch; Karima El Rhazi; Samar Abd ElHafeez; Henry Silverman – Research Ethics, 2024
Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the…
Descriptors: Research, Ethics, Committees, Attitudes
Mari-Liisa Parder; Pieter Gryffroy; Marten Juurik – Research Ethics, 2024
The growing importance of researching online activities, such as cyber-deviance and cyber-crime, as well as the use of online tools (e.g. questionnaires, games, and other interactive tools) has created new ethical and legal challenges for researchers, which can be even more complicated when researching adolescents. In this article, we highlight…
Descriptors: Foreign Countries, Crime Prevention, Ethics, Computer Security
Download full textNewcombe, Nicolina – Waikato Journal of Education, 2022
Obtaining ethical approval for my PhD research with adults with learning (intellectual) disabilities presented an unexpected challenge of learning to work with two sets of guidance: the United Nations Convention on the Rights of Persons with Disabilities (CRPD), and the Ethical Conduct in Human Research and Related Activities Regulations (HRR).…
Descriptors: Ethics, Adults, Intellectual Disability, Civil Rights
Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Carly Seedall; Lisa Tambornino – Research Ethics, 2024
This scoping review maps research ethics and integrity challenges and best practices encountered by research actors in the DACH countries (Germany, Austria, and Switzerland), including researchers, funders, publishers, research ethics committees, and policymakers, during the COVID-19 pandemic. The COVID-19 pandemic brought research and, in turn,…
Descriptors: Research, Ethics, Integrity, Barriers
Curran, Dorothyann; Kekewich, Mike; Foreman, Thomas – Research Ethics, 2019
It is becoming widely recognized that dissemination of research results to participants is an important action for the conclusion of a research study. Most research institutions have standardized consent documents or templates that they require their researchers to use. Consent forms are an ideal place to indicate that results of research will be…
Descriptors: Information Dissemination, Records (Forms), Foreign Countries, Research
O'Farrelly, Christine; Tatlow-Golden, Mimi – European Early Childhood Education Research Journal, 2022
Formal consent for children's research participation legally resides with adults, and guidelines typically recommend consulting children about their participation only from 7 years of age. How can researchers support younger children's informed decision-making about their research participation, particularly in larger-scale studies without…
Descriptors: Young Children, Informed Consent, Decision Making, Research
Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)
Humpage, Louise; Fozdar, Farida; Marlowe, Jay; Hartley, Lisa – Research Ethics, 2019
'Vulnerability' is a key concept used to understand the ethical implications of conducting refugee-focused research. This case study illustrates the need to follow Luna's (2009) call for a shift from a 'labels' to a 'layers' approach to vulnerability by analysing how two university ethics committees responded to issues of informed consent in two…
Descriptors: Refugees, Ethics, Research, Research Methodology
Scott-Barrett, Juliet; Cebula, Katie; Florian, Lani – International Journal of Research & Method in Education, 2019
This study explores the opportunities and dilemmas that have been encountered by researchers seeking the views of young people with autism. Twelve researchers were interviewed about their experiences in this field. Through exploration of the complex methodological and ethical issues that they encountered, this study aims to better understand how…
Descriptors: Autism, Interpersonal Relationship, Children, Youth
Bissenden, Michelle; Gunn, Alexandra C. – Early Childhood Folio, 2017
As a non-participant observer of a Teaching and Learning Research Initiative (TLRI) on children's storytelling, I explored children's understanding of research involving them, including their rights to consent, assent and dissent to participate. In this case study of Timmy's participation in research, I show how Timmy's researcher sought and…
Descriptors: Childrens Rights, Informed Consent, Research, Participation
Jongsma, Karin; van de Vathorst, Suzanne – Research Ethics, 2015
In order to discover an effective treatment for dementia it is necessary to include dementia patients in clinical research trials. Dementia patients face an increased risk to lose the capacity to consent to research participation, and research possibilities with incompetent participants are legally strictly limited. One solution is for patients to…
Descriptors: Dementia, Patients, Research, At Risk Persons
Biggs, John S. G.; Marchesi, August – Research Ethics, 2015
The length of participant information sheets (ISs) for research and difficulties in their comprehension have been a cause of increasing concern. We aimed to examine the information sheets in research proposals submitted to an Australian HREC in one year, comparing the results with national recommendations and published data. Information sheets in…
Descriptors: Informed Consent, Difficulty Level, Comprehension, Readability
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