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Direct linkKim, Julianna H.; Hughes, Oscar E.; Demissie, Sarah A.; Kunzier, Timothy J.; Cheung, W. Catherine; Monarrez, Edwin C.; Burke, Meghan M.; Rossetti, Zach – Intellectual and Developmental Disabilities, 2022
Research related to the developmental disability (DD) community should include collaboration "with" individuals with DD. Unfortunately, people with DD are infrequently involved in research projects in meaningful ways, and there is little guidance about how to collaborate equitably with researchers with DD. The purpose of this article is…
Descriptors: Developmental Disabilities, Research Methodology, Cooperation, Research
Swenson, Sue – Intellectual and Developmental Disabilities, 2015
This speech was presented at a conference, the National Goals in Research, Policy, and Practice, held in Washington, DC, on August 6-7, 2015. The conference was a working meeting to summarize the current state of knowledge and identify a platform of national goals in research, practice, and policy in intellectual and developmental disabilities.…
Descriptors: Intellectual Disability, Developmental Disabilities, State of the Art Reviews, Research Methodology
Stortz, Jessica N.; Lake, Johanna K.; Cobigo, Virginie; Ouellette-Kuntz, Hélène M. J.; Lunsky, Yona – Intellectual and Developmental Disabilities, 2014
"Polypharmacy" is the concurrent use of multiple medications, including both psychotropic and non-psychotropic drugs. Although it may sometimes be clinically indicated, polypharmacy can have a number of negative consequences, including medication nonadherence, adverse drug reactions, and undesirable drug--drug interactions. The objective…
Descriptors: Mental Retardation, Developmental Disabilities, Drug Therapy, Older Adults
Fujiura, Glenn T. – Intellectual and Developmental Disabilities, 2012
Self-reported health is an important outcome in the evaluation of health care but is largely ignored in favor of proxy-based reporting for people with an intellectual disability. This study briefly reviews the role of self-report in health assessment of people with intellectual disability and the challenges and recommendations that have emerged…
Descriptors: Mental Retardation, Interviews, Physical Health, Self Disclosure (Individuals)
Jurkowski, Janine M. – Intellectual and Developmental Disabilities, 2008
People with intellectual disabilities have few opportunities to actively participate in research affecting programs and policies. Employment of participatory action research has been recommended. Although use of this approach with people who have intellectual disabilities is growing, articles on specific participatory research methods are rare.…
Descriptors: Research Tools, Participatory Research, Action Research, Mental Retardation
Blackford, Jennifer Urbano – Intellectual and Developmental Disabilities, 2009
Confounding variables can affect the results from studies of children with Down syndrome and their families. Traditional methods for addressing confounders are often limited, providing control for only a few confounding variables. This study introduces propensity score matching to control for multiple confounding variables. Using Tennessee birth…
Descriptors: Down Syndrome, Research Methodology, Neonates, Body Weight
