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Showing 1 to 15 of 17 results Save | Export
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Joanna Morrison; Awantika Priyadarshani; Abriti Arjyal – International Journal of Social Research Methodology, 2024
Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual…
Descriptors: Foreign Countries, Researchers, Action Research, Participatory Research
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Newcombe, Nicolina – Waikato Journal of Education, 2022
Obtaining ethical approval for my PhD research with adults with learning (intellectual) disabilities presented an unexpected challenge of learning to work with two sets of guidance: the United Nations Convention on the Rights of Persons with Disabilities (CRPD), and the Ethical Conduct in Human Research and Related Activities Regulations (HRR).…
Descriptors: Ethics, Adults, Intellectual Disability, Civil Rights
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Matic, Igor; De Nardi, Gianni; Steiner, Felix – AILA Review, 2021
Medical researchers are ethically and legally required to inform participants and get written permission before enrolling them into a human research project ("Informed Consent"). Accordingly, information and consent represent a complex procedure, and the participant concerned "must receive comprehensible oral and written…
Descriptors: Informed Consent, Ethics, Medical Research, Researchers
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
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Carly Seedall; Lisa Tambornino – Research Ethics, 2024
This scoping review maps research ethics and integrity challenges and best practices encountered by research actors in the DACH countries (Germany, Austria, and Switzerland), including researchers, funders, publishers, research ethics committees, and policymakers, during the COVID-19 pandemic. The COVID-19 pandemic brought research and, in turn,…
Descriptors: Research, Ethics, Integrity, Barriers
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Sherwood, Gina; Parsons, Sarah – Research Ethics, 2021
The real-world navigation of ethics-in-practice versus the bureaucracy of institutional ethics remains challenging. This is especially true for research with children and young people who may be considered vulnerable by the policies and procedures of ethics committees but agentic by researchers. Greater transparency is needed about how this…
Descriptors: Informed Consent, Children, Adolescents, Social Science Research
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Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)
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Tauri, Juan M. – Research Ethics, 2018
Recently, Indigenous commentators have begun to analyse the way in which institutional Research Ethics Boards (REBs) engage with Indigenous researchers and participants, respond to Indigenous peoples' concerns with academic research activities, and scrutinise the ethics proposals of Indigenous scholars. Of particular concern for Indigenous…
Descriptors: Indigenous Populations, Researchers, Ethics, Informed Consent
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Yamanaka, Mayumi; Suzuki, Mika; Sato, Keiko – Research Ethics, 2021
Very few attempts have been made to survey patient opinions, particularly regarding the use of residual biospecimens and health information in research, to clarify their values. We conducted a questionnaire survey that targeted outpatients of a university hospital to gauge their awareness levels and understand patient perspectives on research that…
Descriptors: Patients, Researchers, Medical Research, Information Utilization
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Syed, Hassan; Syed, Ghazal Kazim – Research in Education, 2021
This paper reports on the challenges faced by two researchers during data collection and translation of data and analysis in two public sector universities in Pakistan. Data collection from each institute involved different procedures and a different set of issues, including negotiating access with gatekeepers and participants, dealing with…
Descriptors: Novices, Researchers, Qualitative Research, Research Administration
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Scott-Barrett, Juliet; Cebula, Katie; Florian, Lani – International Journal of Research & Method in Education, 2019
This study explores the opportunities and dilemmas that have been encountered by researchers seeking the views of young people with autism. Twelve researchers were interviewed about their experiences in this field. Through exploration of the complex methodological and ethical issues that they encountered, this study aims to better understand how…
Descriptors: Autism, Interpersonal Relationship, Children, Youth
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Lee, Jung-Sook; Bartolomei, Linda; Pittaway, Eileen – International Journal of Social Research Methodology, 2016
This paper presents an innovative and effective approach for conducting surveys with preliterate adults in a context of limited infrastructure in post conflict Burundi, Africa. We conducted surveys with parents/carers of children with a disability and community members, as a component of mixed methods research with children and adults to provide…
Descriptors: Foreign Countries, Social Science Research, Research Methodology, Surveys
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Lund, Ingrid; Helgeland, Anne; Kovac, Velibor Bobo – Early Child Development and Care, 2016
When conducting research with children it is essential to consider not only the data, which have been produced as a result of the research, but also the research process itself. This article represents an attempt to contribute the accumulation of knowledge regarding methodological and ethical issues concerning research with children. The data in…
Descriptors: Research Methodology, Ethics, Bullying, Kindergarten
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Aitken, V. – Research in Drama Education, 2014
This article describes the drama-based research strategy "researcher-in-role," developed during the two-year "Connecting Curriculum, Connecting Learning" project, based in New Zealand. First, a definition of researcher-in-role is offered along with a survey of relevant literature. Then the evolution and implementation of the…
Descriptors: Role, Children, Classroom Research, Drama
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Stockley, Denise; Balkwill, Laura-Lee – Canadian Journal for the Scholarship of Teaching and Learning, 2013
Does the subject of research ethics take you by surprise? Does it make you somewhat uncomfortable? Does it seem to have nothing to do with your research or your practice? These are the attitudes we have encountered about research ethics among some SoTL researchers at workshops and conferences. In many cases, these researchers had conducted…
Descriptors: Consciousness Raising, Ethics, Educational Research, Educational Development
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