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Direct linkKasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
Francesca Ribenfors; Lauren Blood; Chris Hatton; Anna Marriott – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Given the current sociopolitical climate, people with intellectual disabilities are spending more time at home. Much housing-related research focuses on informant-completed measures and quantifiable outcomes. By contrast, this article explores the perspectives of adults with intellectual disabilities concerning what they liked or…
Descriptors: Residential Programs, Residential Care, Intellectual Disability, Adults
Todd, Stuart; Bernal, Jane; Shearn, Julia; Worth, Rhian; Jones, Edwin; Lowe, Kathy; Madden, Phil; Barr, Owen; Forrester Jones, Rachel; Jarvis, Paul; Kroll, Thilo; McCarron, Mary; Read, Sue; Hunt, Katherine – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Population-based data are presented on the nature of dying in intellectual disability services. Methods: A retrospective survey was conducted over 18 months with a sample of UK-based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population. For 158 (71%) deaths,…
Descriptors: Foreign Countries, Death, Intellectual Disability, Mortality Rate
Sanna Fjellström; Jessica Hölttä; Anna Nordström; Eva Flygare Wallén; Marie Lund Ohlsson; Elisabeth Hansen – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are less physically active and suffer from ill-health more than the general population. Support staff play an important role in the person's life. This study aimed to explore the support staff's experiences regarding the feasibility of adapted web-based exercise for people with intellectual…
Descriptors: Intellectual Disability, Physical Activity Level, Health Behavior, Web Based Instruction
Røstad-Tollefsen, Helen K.; Kolset, Svein O.; Retterstøl, Kjetil; Hesselberg, Heidi; Nordstrøm, Marianne – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Adults with intellectual disabilities living in residential houses have a high prevalence of obesity which is related to poor dietary habits. Aim: The aim of this study was to assess supporting staff`s thoughts and experiences on factors influencing their opportunities to promote a healthy diet in adults with intellectual disabilities.…
Descriptors: Adults, Intellectual Disability, Physical Health, Health Promotion
Watchman, Karen; Mattheys, Kate; McKernon, Michael; Strachan, Heather; Andreis, Federico; Murdoch, Jan – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use…
Descriptors: Intellectual Disability, Dementia, Comorbidity, Stress Management
Olivier-Pijpers, Vanessa Charissa; Cramm, Jane Murray; Landman, Wouter; Nieboer, Anna Petra – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present authors examined changes made in disability service organizations supporting residents with intellectual disabilities and challenging behaviours, because these changes may influence residents' support and subsequently their challenging behaviours. Method: In this multiple case study, the present authors collected and…
Descriptors: Intellectual Disability, Behavior Problems, Organizational Change, Foreign Countries
Gast, David A. A.; de Wit, Gabriela L. C.; van Hoof, Amber; de Vries, Jeanne H. M.; van Hemert, Bert; Didden, Robert; Giltay, Erik J. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We sought to assess diet quality among people with intellectual disabilities or borderline intellectual functioning, living in residential facilities or receiving day care. Methods: We measured diet quality using the Dutch Healthy Diet Food Frequency Questionnaire (DHD) and compared this between participants with (n = 151) and controls…
Descriptors: Mild Intellectual Disability, Dietetics, Day Programs, Residential Programs
van den Driessen Mareeuw, Francine A.; Coppus, Antonia M. W.; Delnoij, Diana M. J.; de Vries, Esther – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…
Descriptors: Down Syndrome, Health Services, Attitudes, Parent Attitudes
Flynn, Samantha; Totsika, Vasiliki; Hastings, Richard P.; Hood, Kerry; Toogood, Sandy; Felce, David – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The review examined the effectiveness of Active Support (RQ1) and stakeholders' experiences of the model (RQ2). Method: Data were meta-analysed (RQ1; studies = 14) and synthesized narratively (RQ2; studies = 10). Results: By follow-up (6 months post-training), effect sizes (RQ1) for resident total activity engagement were significant…
Descriptors: Intellectual Disability, Adults, Residential Programs, Staff Development
Olivier-Pijpers, Vanessa C.; Cramm, Jane M.; Nieboer, Anna P. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: We examined the influence of the organizational environment on challenging behaviour in people with intellectual disabilities to increase understanding of the quality of support services for people with intellectual disabilities. Method: Twenty-one professionals and managers from four specialized Dutch disability service organizations…
Descriptors: Environmental Influences, Behavior Problems, Intellectual Disability, Foreign Countries
Moro, Teresa T.; Savage, Teresa A.; Gehlert, Sarah – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The nature and quality of end-of-life care received by adults with intellectual disabilities in out-of-home, non-institutional community agency residences in Western nations is not well understood. Method: A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer-reviewed…
Descriptors: Adults, Intellectual Disability, Death, Medical Services
Petropoulou, Evangelia; Finlayson, Janet; Hay, Margaret; Spencer, Wendy; Park, Richard; Tannock, Hugh; Galbraith, Erin; Godwin, Jon; Skelton, Dawn A. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Providers of supported living services to adults with intellectual disabilities (IDs) in the United Kingdom have procedures in place to monitor injuries; this provides opportunity to learn about the injuries being reported and recorded. The aim was to determine the incidence, causes and types of injuries experienced by 593 adults with…
Descriptors: Foreign Countries, Injuries, Adults, Intellectual Disability
Northway, Ruth; Jenkins, Robert; Holland-Hart, Daniella – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Despite awareness of the age related health needs of people with intellectual disabilities little is known regarding how residential social care staff are prepared to meet such needs. Methods: Data were gathered via semi-structured interviews from 14 managers of supported living settings. Transcripts were thematically analysed.…
Descriptors: Older Adults, Aging (Individuals), Intellectual Disability, Caregiver Training
Clement, Tim; Bigby, Christine – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Adults with severe challenging behaviour can achieve good "quality of life" outcomes in small supported accommodation services. Yet, the research indicates that they typically experience poorer outcomes than other adults with intellectual disability. This raises questions about the degree to which research has informed…
Descriptors: Program Design, Program Development, Mental Retardation, Quality of Life
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