ERIC Number: EJ1466123
Record Type: Journal
Publication Date: 2025-Apr
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: EISSN-1461-7005
Available Date: 0000-00-00
'I'm Sick of Being the Problem': Autistic Mothers' Experiences of Interacting with Schools for Their Autistic Children
Aspasia Stacey Rabba1,2; Jodie Smith1,3; Gabrielle Hall1,4; Vanessa Alexander5; Kate Batty1; Poulomee Datta1; Emma Goodall5; Melanie Heyworth1,6; Siobhan Lamb1; Wenn Lawson1; Rozanna Lilley1; Katy Reid1; Najeeba Syeda5; Elizabeth Pellicano1,7
Autism: The International Journal of Research and Practice, v29 n4 p1034-1046 2025
Successful partnerships between families and schools can substantially improve children's success in and out of school. Yet parents of autistic children often report considerable challenges with their children's education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences of autistic parents' interactions with schools for their autistic children. We conducted semi-structured interviews with 31 autistic mothers of autistic children engaged in education in Australia. We analysed the data using reflexive thematic analysis. Autistic mothers repeatedly expressed feeling like they were in a 'war zone', fighting ongoing battles to gain the necessary support for their autistic child and were 'sick of being [viewed as] the problem'. They also felt that their expertise as parents -- and experiential expertise as autistic parents -- was often overlooked or ignored. All of this had negative effects on their and their children's mental health. Despite these negative experiences, autistic mothers who had experienced positive interactions with schools highlighted the importance of mutual respect in establishing and maintaining successful school partnerships and how their own determination and self-advocacy helped to foster these relationships. This research sheds light on the critical ingredients of effective home--school partnerships for autistic families.
Descriptors: Autism Spectrum Disorders, Mothers, Parent Attitudes, Parent School Relationship, Barriers, Parent Role, Foreign Countries, Students with Disabilities, Conflict, School Role, Self Advocacy
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Australia
Grant or Contract Numbers: N/A
Author Affiliations: 1Macquarie University, Australia; 2Monash University, Australia; 3La Trobe University, Australia; 4University of Technology Sydney, Australia; 5Positive Partnerships, Australia; 6Reframing Autism, Australia; 7University College London, UK