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Aging on the Autism Spectrum: Physical Activity in Individuals Receiving State Services in the United States
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Waldron, Danielle A.; Stokes, Jeffrey; Coyle, Caitlin E.; Kramer, John; Dugan, Elizabeth – Journal of Autism and Developmental Disorders, 2023
This study explores factors associated with participation in moderate physical activity and muscle strengthening activity in adults with autism receiving state services (age: 18-78 years). Researchers analyzed the National Core Indicators-In Person Survey (2017-2018) data using multilevel mixed effects logistic regression. Older adults on the…
Descriptors: Adults, Autism Spectrum Disorders, Physical Activity Level, Services
Perceptions of the Professionals and Parents of Children with Autism Spectrum Disorders about Autism Services; a Qualitative Study
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Gholipour, Kamal; Ghiasi, Akbar; Shahrokhi, Hassan; Dadashi, Zeinab; Javanmard, Simin; Tabatabaei, Seyyed Hasan; Iezadi, Shabnam – Journal of Autism and Developmental Disorders, 2023
In this qualitative study, we aimed to explore the challenges of providing services and supports for children with autism spectrum disorders (ASD) and their families from the perceptions of professionals and parents of children with ASD. We classified the results of the study into three key categories including shortcomings in the management of…
Descriptors: Parents, Children, Autism Spectrum Disorders, Services
Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning
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Kristin A. Long; Jade LaRochelle; Monica Gordillo; Emily M. Pariseau; Melissa G. DeCelle; Gael Orsmond – Journal of Autism and Developmental Disorders, 2025
The adult service system does not adequately meet the needs of autistic adults, prompting families to continue their supportive roles. Siblings frequently assume these roles when parents are no longer able to do so, often without preparation or planning. We received feedback on the proposed Siblings FORWARD (Focusing on Relationships, Well-being,…
Descriptors: Adults, Autism Spectrum Disorders, Needs, Services
Navigating the Transition to Adulthood: Insights from Caregivers of Autistic Individuals
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Samara M. Wolpe; Amanda R. Johnson; Sunny Kim – Journal of Autism and Developmental Disorders, 2025
With many teens having to transition from a mainly educational system of support to a set of health and social service systems (Shattuck et al. in Autism Res Treat https://doi.org/10.1155/2014/924182, 2017), there is a critical need to advance research and support services in the area of autism and transition to aid autistic* individuals and their…
Descriptors: Adolescents, Autism Spectrum Disorders, Transitional Programs, School Role
Differences between Black and White Caregivers in the Association between Autism Diagnostic Process Satisfaction and Service Use
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Allison P. Fisher; James D. Lynch – Journal of Autism and Developmental Disorders, 2025
Background: Black families of children with autism spectrum disorder have less access to high quality, culturally responsive care for their children. Method: We assessed satisfaction and service utilization among fifty (29%) Black caregivers and 124 (71%) White caregivers of children with autism spectrum disorder. We also examined whether race…
Descriptors: Racial Differences, African Americans, Whites, Children
Impact of the COVID-19 Pandemic on Daily Life: Diverse Experiences for Autistic Adults
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Maljaars, Jarymke; Gijbels, Eef; Evers, Kris; Spain, Debbie; Rumball, Freya; Happé, Francesca; Noens, Ilse – Journal of Autism and Developmental Disorders, 2023
Using a mixed methods design, this study aimed to examine the impact of the COVID-19 pandemic on autistic and non-autistic adults. We conducted an online survey with 196 autistic and 228 non-autistic adults from Belgium, the Netherlands and the United Kingdom focusing on their experiences during the first period of the pandemic. Our results…
Descriptors: COVID-19, Adults, Autism Spectrum Disorders, Experience
Development of a Novel Telemedicine Tool to Reduce Disparities Related to the Identification of Preschool Children with Autism
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Liliana Wagner; Alison Vehorn; Amy S. Weitlauf; Ambar Munoz Lavanderos; Joshua Wade; Laura Corona; Zachary Warren – Journal of Autism and Developmental Disorders, 2025
The wait for ASD evaluation dramatically increases with age, with wait times of a year or more common as children reach preschool. Even when appointments become available, families from traditionally underserved groups struggle to access care. Addressing care disparities requires designing identification tools and processes specifically for and…
Descriptors: Autism Spectrum Disorders, Preschool Children, Access to Health Care, Access to Education
Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access during the Transition to Adulthood for Youth with ASD
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Taylor, Julie Lounds; Pezzimenti, Florencia; Burke, Meghan M.; DaWalt, Leann Smith; Lee, Chung eun; Rabideau, Carol – Journal of Autism and Developmental Disorders, 2022
Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access…
Descriptors: Youth, Autism, Pervasive Developmental Disorders, Transitional Programs
Real-World Experiences in Autistic Adult Diagnostic Services and Post-Diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
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Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
Intellectual, Adaptive, and Behavioral Functioning Associated with Designated Levels of Support in a Sample of Autistic Children Referred for Tertiary Assessment
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Lauren Gardner; Callie Gilchrest; Jonathan M. Campbell – Journal of Autism and Developmental Disorders, 2024
The diagnostic criteria for autism spectrum disorder in the DSM-5-TR features the option to designate levels of support for social communication (SC) and restricted, repetitive behaviors (RRB). These levels are conceptual in nature, but research indicates standardized assessment outcomes correspond with clinician-assigned levels of support. The…
Descriptors: Diagnostic Tests, Evaluation Criteria, Autism Spectrum Disorders, Behavior Problems
Trends over a Decade in NIH Funding for Autism Spectrum Disorder Services Research
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Cervantes, Paige E.; Matheis, Maya; Estabillo, Jasper; Seag, Dana E. M.; Nelson, Katherine L.; Peth-Pierce, Robin; Hoagwood, Kimberly Eaton; Horwitz, Sarah McCue – Journal of Autism and Developmental Disorders, 2021
Investments in autism spectrum disorder (ASD) research, guided by the Interagency Autism Coordinating Committee (IACC), have focused disproportionately on etiology over a well-established stakeholder priority area: research to improve accessibility and quality of community-based services. This study analyzed National Institutes of Health ASD…
Descriptors: Investment, Financial Support, Autism, Pervasive Developmental Disorders
A Systematic Literature Review of Racial Disproportionality in Autism in the U.S.
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Hyejung Kim; Muhammet Furkan Karakaya; Mandy Skinner; Diana Baker – Journal of Autism and Developmental Disorders, 2025
In recent years, the Autism and Developmental Disabilities Monitoring Network has observed a shift in racial disparities in autism. To delineate the historical shift of racial disproportionality in US autism prevalence, our literature review examines three key topics: publication trends concerning racial disproportionality in autism, discernible…
Descriptors: Autism Spectrum Disorders, Incidence, Racial Differences, Disproportionate Representation
"I Don't Do Much without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children
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Lindly, Olivia J.; Cabral, Jacqueline; Mohammed, Ruqayah; Garber, Ivonne; Mistry, Kamila B.; Kuhlthau, Karen A. – Journal of Autism and Developmental Disorders, 2022
Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement…
Descriptors: Knowledge Level, Parents, Young Children, Autism
Beyond Friendship: The Spectrum of Social Participation of Autistic Adults
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Chan, Dara V.; Doran, Julie D.; Galobardi, Osly D. – Journal of Autism and Developmental Disorders, 2023
Difficulties with social interactions and communication that characterize autism persist in adulthood. While social participation in adulthood is often marked by social isolation and limited close friendships, this qualitative study describes the range of social participation activities and community contacts, from acquaintances to close…
Descriptors: Autism Spectrum Disorders, Adults, Interpersonal Relationship, Social Life
Referral, Assessment and Use of Screening Measures Related to Autism Spectrum Disorder at a Tertiary Hospital Setting
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Bernie, C.; Williams, K.; O'Connor, B.; Rogers, S.; May, T. – Journal of Autism and Developmental Disorders, 2021
Children with developmental concerns in Australia continue to experience inequitable healthcare and service-related delays, even when diagnostic risk is identified. This study sought to explore service and demographic pathway factors leading up to autism spectrum disorder (ASD) assessment, including value of screening measures applied at triage.…
Descriptors: Foreign Countries, Children, Autism, Pervasive Developmental Disorders
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