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Tal Araten-Bergman; Christine Bigby – Journal of Intellectual & Developmental Disability, 2024
Background: This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting services for this group in the context of individualised funding. Method: Qualitative interviews were conducted with 21 staff working in…
Descriptors: Aging (Individuals), Intellectual Disability, Group Homes, Caregiver Attitudes
Joanna Ting Wai Chu; Holly Wilson; Sophia Pi; Jessica C. McCormack; Samantha Marsh; David Newcombe; Chris Bullen – Journal of Intellectual & Developmental Disability, 2025
Background: Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disability caused by prenatal alcohol exposure (PAE). Healthcare professionals (HCP) are key in prevention, diagnosis, and supporting individuals with FASD. This study explored the FASD knowledge, attitudes, and practices among HCP in Aotearoa, New Zealand…
Descriptors: Fetal Alcohol Syndrome, Knowledge Level, Attitudes, Allied Health Personnel
Su, Hui; Gong, Hailing; Llewellyn, Gwynnyth; Liu, Jinxia; Yi, Yali; Gao, Yaqian – Journal of Intellectual & Developmental Disability, 2023
Background: Families of children with developmental disabilities face extraordinary changes in their life circumstances and needs that require adaptations to create sustainable and meaningful daily routines. The present study explored the adaptation of Chinese families of children with developmental disabilities from an ecocultural theoretical…
Descriptors: Foreign Countries, Children, Developmental Disabilities, Family Environment
Shoshana Dreyfus; Anne Nolan; Melanie Randle – Journal of Intellectual & Developmental Disability, 2024
Background: This study investigated the extent to which behaviour support services are accessible under Australia's National Disability Insurance Scheme (NDIS). Method: We conducted semi-structured interviews with families who support a member with an intellectual disability and challenging behaviour. We analysed this data with a supply and demand…
Descriptors: Foreign Countries, Behavior Modification, Access to Health Care, Intellectual Disability
Hayward, Brent A.; McKay-Brown, Lisa; Poed, Shiralee; McVilly, Keith – Journal of Intellectual & Developmental Disability, 2022
Background: Little is known about networks for positive behaviour support (PBS) in disability services. This study explores a PBS network to identify influential persons in its promotion and communication. Methods: Quantitative sociometric methods were used to identify persons who occupy positions of either boundary spanning (those that link…
Descriptors: Positive Behavior Supports, Disabilities, Services, Social Networks
Smith, Lauren D.; Valentine, Anne; Moore Simas, Tiffany A.; Parish, Susan L.; Levy, Alanna; Mitra, Monika – Journal of Intellectual & Developmental Disability, 2023
Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities.…
Descriptors: Intellectual Disability, Developmental Disabilities, Pregnancy, Perinatal Influences
Dodds, Robin L.; Maurer, Karolyn J.; Montgomery, LaQuita Spivey; Cutting, Sean; Jilek, Courtney – Journal of Intellectual & Developmental Disability, 2022
Background: Adults with disabilities in low-income communities of colour are disproportionately affected by the COVID-19 pandemic. Method: We interviewed 14 self-advocates with intellectual and developmental disabilities (IDD) to learn more about their experiences during the peak of infections, hospitalisations, and deaths in Los Angeles, between…
Descriptors: Self Advocacy, Adults, Intellectual Disability, Developmental Disabilities
Lloyd, Jan; Moni, Karen; Cuskelly, Monica; Jobling, Anne – Journal of Intellectual & Developmental Disability, 2021
Background: With the introduction of the National Disability Insurance Scheme (NDIS), creation and implementation of participants' plans are becoming a research focus. As many families facilitate the implementation of plans, it is important to understand the enablers and barriers to this process. Method: This study investigated the experiences of…
Descriptors: Adults, Intellectual Disability, Parent Attitudes, Barriers
Gauthier-Boudreault, C.; Couture, M.; Gallagher, F. – Journal of Intellectual & Developmental Disability, 2021
Background: Planning the transition to adulthood of youth with severe to profound intellectual disability (ID) requires professionals from different institutions to work together. However, there are few studies in the literature that focus on professionals involved in this transition. Method: This study documented factors impacting the transition…
Descriptors: Severe Intellectual Disability, Transitional Programs, Barriers, Foreign Countries
Potter, Carol A. – Journal of Intellectual & Developmental Disability, 2017
Background: Despite general increased recognition of the importance of fathers, their role in the lives of children with autism remains underresearched. Methods: This study aimed to investigate the nature and extent of father involvement through an online survey of fathers of children with a diagnosis of autism in the UK. Results: Of the 306…
Descriptors: Fathers, Parent Child Relationship, Homework, Family Work Relationship
Riches, Vivienne Catherine – Journal of Intellectual & Developmental Disability, 2003
A supports classification and assessment system is required in residential settings that enables accurate classification and resource allocation in the context of limited resources. In developing such a system, the American Association on Mental Retardation intensities of supports framework was used and consultation with all stakeholders resulted…
Descriptors: Resource Allocation, Classification, Mental Retardation, Evaluation Methods