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Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Motor Activation in People with Profound Intellectual and Multiple Disabilities in Daily Practice
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van der Putten, Annette A. J.; Bossink, Leontien W. M.; Frans, Niek; Houwen, Suzanne; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2017
Background: People with profound intellectual and multiple disabilities (PIMD) are at risk of being motorically inactive. This study investigated the degree and type of motor activation in daily practice and its relationship to personal and contextual factors. Method: A total of 58 participants with PIMD participated in the study. Data concerning…
Descriptors: Physical Activities, Exercise, Motor Development, Severe Disabilities
Students with Significant Cognitive Disabilities and Dual Sensory Loss
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M. Karvonen; B. Beitling; K. Erickson; S. Morgan; R. Bull – National Center on Deaf-Blindness, 2021
This report describes a project that uses existing data sets to describe the population of students with significant cognitive disabilities and known or suspected dual sensory loss. It includes students with suspected dual sensory loss because students with significant cognitive disabilities are reported to have unidentified sensory loss (Erickson…
Descriptors: Intellectual Disability, Comorbidity, Perceptual Impairments, Student Characteristics
Unnoticed Post-Void Residual Urine Volume in People with Moderate to Severe Intellectual Disabilities: Prevalence and Risk Factors
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de Waal, K. H.; Tinselboer, B. M.; Evenhuis, H. M.; Penning, C. – Journal of Intellectual Disability Research, 2009
Background: Increased post-void residual urine volume (PVR) is often seen in geriatric populations. People with intellectual disabilities (ID) have risk factors in common with these populations. Aims: To investigate in adults with ID: (1) Feasibility of portable ultrasound bladder scanning; (2) Prevalence of PVR; and (3) Relations with proposed…
Descriptors: Multiple Disabilities, Incidence, Mental Retardation, Chronic Illness
Domains of Quality of Life of People with Profound Multiple Disabilities: The Perspective of Parents and Direct Support Staff
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Petry, Katja; Maes, Bea; Vlaskamp, Carla – Journal of Applied Research in Intellectual Disabilities, 2005
Background: This study considered the general validity of the basic domains of quality of life that appear in theoretical models, in relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these basic domains for people with profound multiple disabilities. They investigated…
Descriptors: Health Promotion, Multiple Disabilities, Severe Disabilities, Severe Mental Retardation
Cognitive and Adaptive Functioning in 28 Girls with Rett Syndrome. Brief Report.
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Perry, Adrienne; And Others – Journal of Autism and Developmental Disorders, 1991
This study of 28 girls (ages 2-19) with Rett Syndrome found profound handicaps in the intellectual and adaptive areas, according to standardized tests. Subjects seemed capable of learning some self-help skills at a basic level. The Cattell Mental Age was significantly negatively correlated with chronological age. (JDD)
Descriptors: Adaptive Behavior (of Disabled), Age Differences, Chronological Age, Cognitive Ability