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Lotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
Jennifer Marie Sprague – ProQuest LLC, 2022
Individuals with profound intellectual and multiple disabilities (PIMD) rely on direct support professionals (DSPs) to communicate with them and plan meaningful activities of daily living (ADL) for them. This qualitative descriptive study explored how DSPs providing ongoing care who work directly with individuals with PIMD describe the use of…
Descriptors: Quality of Life, Severe Disabilities, Intellectual Disability, Multiple Disabilities
Kruithof, Kasper; Willems, Dick; Etten-Jamaludin, Faridi; Olsman, Erik – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. Method: We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index…
Descriptors: Parent Child Relationship, Caregiver Role, Children, Intellectual Disability
Esteves, Jeffrey; Perry, Adrienne; Spiegel, Rebecca; Weiss, Jonathan A. – Journal of Mental Health Research in Intellectual Disabilities, 2021
Introduction: Challenging behaviors are common in individuals with developmental disabilities and pose significant challenges to their well-being and that of their families and communities. Method: We explored the occurrence and predictors of self-injurious behavior and aggressive/destructive behavior in 372 Canadian youths (aged 4-20 years) with…
Descriptors: Predictor Variables, Incidence, Behavior Problems, Aggression
National Center on Deaf-Blindness, 2022
This brief, co-produced by the National Center on Deaf-Blindness (NCDB) and Accessible Teaching, Learning, and Assessment Systems (ATLAS), provides important information about the differences between students with significant cognitive disabilities who have cortical visual impairment (CVI) and those who have other types of visual impairment (VI).…
Descriptors: Intellectual Disability, Visual Impairments, Severe Disabilities, Multiple Disabilities
National Center on Deaf-Blindness, 2022
This brief, co-produced by the National Center on Deaf-Blindness (NCDB) and Accessible Teaching, Learning, and Assessment Systems (ATLAS), provides important information about students with dual sensory loss who also have significant cognitive disabilities, as well as recommendations for identification and implications for instruction. The…
Descriptors: Intellectual Disability, Severe Disabilities, Deaf Blind, Students with Disabilities
Young, Hannah – International Journal of Developmental Disabilities, 2017
Objectives: Engaging people with profound intellectual and multiple disabilities (PIMD) in relation to issues of bereavement and loss is often seen as a complex therapeutic challenge. The author examines the barriers preventing them from engaging with the grieving process in supported ways. Methods: Through the lens of Worden's Tasks of Grief…
Descriptors: Barriers, Grief, Severe Disabilities, Intellectual Disability
Brock, Matthew E.; Schaefer, John M.; Seaman, Rachel L. – Theory Into Practice, 2020
Supporting agency can be complex and challenging, especially when teaching students with severe disabilities (i.e., students with intellectual disability, autism, and/or multiple disabilities who are eligible for their state's alternate assessment). In this article, we compare Bandura's model of agency with constructs from the severe disabilities…
Descriptors: Self Determination, Severe Disabilities, Students with Disabilities, Student Empowerment
Heräjärvi, Nina U.; O. Leskinen, Markku; A. Pirttimaa, Raija; J. Jokinen, Kimmo; A. Arvio, Maria – European Journal of Special Needs Education, 2020
Prior studies have shown that young adults with severe physical and multiple disabilities are less likely to complete upper secondary education. This study aimed to identify whether these students' type of multiple disability, gender, location and literacy skills were associated with completion of upper secondary education. The participants were…
Descriptors: Foreign Countries, Predictor Variables, Severe Disabilities, Physical Disabilities
van der Putten, Annette A. J.; Bossink, Leontien W. M.; Frans, Niek; Houwen, Suzanne; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2017
Background: People with profound intellectual and multiple disabilities (PIMD) are at risk of being motorically inactive. This study investigated the degree and type of motor activation in daily practice and its relationship to personal and contextual factors. Method: A total of 58 participants with PIMD participated in the study. Data concerning…
Descriptors: Physical Activities, Exercise, Motor Development, Severe Disabilities
Mary E. Morningstar; Jennifer A. Kurth – Inclusion, 2017
Reauthorization of the Individuals with Disabilities Education Act (IDEA) in 2004 established procedural mandates and accountability requirements ensuring all students with disabilities participate and progress in general education curriculum. Broadly speaking, improvements toward greater access have been found for many students with disabilities;…
Descriptors: Student Placement, Students with Disabilities, Inclusion, Access to Education
Johnson, David R.; Thurlow, Martha L.; Wu, Yi-Chen; LaVelle, John M.; Davenport, Ernest C. – Career Development and Transition for Exceptional Individuals, 2020
This study used data from the National Longitudinal Transition Study 2012 (NLTS 2012) to explore the individualized education program (IEP)/transition planning participation and role of students with the most significant cognitive disabilities, compared to students with other disabilities. We viewed students with the most significant cognitive…
Descriptors: Individualized Education Programs, Secondary School Students, Adolescents, Students with Disabilities
Nijs, Sara; Penne, Anneleen; Vlaskamp, Carla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Children with profound intellectual and multiple disabilities (PIMD) meet other children with PIMD in day care centres or schools. This study explores the peer-directed behaviours of children with PIMD, the peer interaction-influencing behaviour of the direct support workers and the children's positioning. Method: Group activities for…
Descriptors: Group Activities, Multiple Disabilities, Intellectual Disability, Children
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