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Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Maria Baranowski; Margherita Cameranesi; Javier Mignone; Lindsay McCombe; Kayla Kostal; Jenna Heschuk; Shahin Shooshtari – Journal of Intellectual & Developmental Disability, 2024
Background: Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones' community…
Descriptors: Severe Intellectual Disability, Severe Disabilities, Developmental Disabilities, Family Attitudes
MacGregor, Laura – Journal of Intellectual Disabilities, 2022
The risk of viral infection during the COVID-19 pandemic has caused many hospitals to prohibit all patient visitors, including family caregivers for people with intellectual disabilities. Drawing on a postmodern, intersubjective view of the body, as well as my experience as the mother of a young adult with profound disabilities, I argue that…
Descriptors: Mothers, Severe Intellectual Disability, Parent Attitudes, Caregivers
Gauthier-Boudreault, C.; Couture, M.; Gallagher, F. – Journal of Intellectual & Developmental Disability, 2021
Background: Planning the transition to adulthood of youth with severe to profound intellectual disability (ID) requires professionals from different institutions to work together. However, there are few studies in the literature that focus on professionals involved in this transition. Method: This study documented factors impacting the transition…
Descriptors: Severe Intellectual Disability, Transitional Programs, Barriers, Foreign Countries
Larue, Caroline; Goulet, Marie-Hélène; Prevost, Marie-Josée; Dumais, Alexandre; Bellavance, Jacques – Journal of Applied Research in Intellectual Disabilities, 2018
Background: A cohort of 11 patients with an intellectual disability and a psychiatric diagnosis present severe behavioural disorders in psychiatric hospital of Quebec in 2009. Control-measure use for this clientele has now been reduced. How do management personnel, families and care teams explain the changes? What clinical interventions did…
Descriptors: Severe Intellectual Disability, Patients, Clinical Diagnosis, Behavior Problems
Lowrey, K. Alisa; Hollingshead, Aleksandra; Howery, Kathy; Bishop, John B. – Research and Practice for Persons with Severe Disabilities, 2017
Voices of practitioners are often missing in research studies. This project focused on examining general education teachers' stories as they relate to implementation of Universal Design for Learning (UDL) framework and inclusion of students with moderate to severe intellectual disability. Seven general education teachers from Canada and the United…
Descriptors: Inclusion, Access to Education, Curriculum Implementation, Teacher Surveys