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Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…
Descriptors: Test Reliability, Pain, Behavior, Adults
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Annemieke Hoogstad; Liesbeth Mevissen; Michelle Kraaij; Robert Didden – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: In persons with severe to moderate intellectual disability (SID), no valid and reliable diagnostic instrument is available to determine PTSD. In this study, a new instrument was evaluated: the Diagnostic Interview Trauma and Stressors -- Severe Intellectual Disability (DITS-SID). Methods: DITS-SID, Aberrant Behavior Checklist and…
Descriptors: Posttraumatic Stress Disorder, Adults, Intellectual Disability, Severe Intellectual Disability
Amanda Gillooly; Dave Dagnan; Richard Hastings; Chris Hatton; Nicola McMeekin; Susie Baines; S. -A. Cooper; Lucy Crawford; David Gillespie; Jenny Miller; Andrew Jahoda – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Almost no research has been published reporting on evaluations of the effectiveness of psychological interventions for people with severe to profound intellectual disabilities and depression. This paper describes the development and initial feasibility testing of an adapted Behavioural Activation therapy (BeatIt2) for this population.…
Descriptors: Severe Intellectual Disability, Psychological Needs, Intervention, Depression (Psychology)
Hanley, Edina; Martin, Anne-Marie; Dalton, Caroline; Lehane, Elaine – Journal of Intellectual Disabilities, 2023
People with severe/profound intellectual disability experience challenges in communicating and require their communication partners to adapt to their means of communication. Augmentative and Alternative Communication (AAC) is recognised as a potential means to meet their communication needs. Interventions need to be aimed at both the individual…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Augmentative and Alternative Communication, Intervention
Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults
Igier, Suzanne; Valérie, Pennequin – Journal of Intellectual Disabilities, 2023
Background: Few studies have evaluated the explanatory factors of poor performance and the effects of context in adults with intellectual disabilities. The aim of this study is to assess the role of a familiar experimenter on their cognitive performance, well-being, metacognitive experiences, and social behaviors. Method: Participants with…
Descriptors: Adults, Intellectual Disability, Moderate Intellectual Disability, Severe Intellectual Disability
Rushton, Rosie; Kossyvaki, Lila; Terlektsi, Emmanouela – Journal of Intellectual Disabilities, 2023
Music is motivational, accessible and engaging for individuals with learning disabilities. Several systematic reviews have addressed the effects of music activity on people with learning disabilities; however, none has specifically reviewed the use of musical activity with people with profound and multiple learning disabilities. This review aimed…
Descriptors: Music, Evidence Based Practice, Music Activities, Program Effectiveness
Danker, Joanne; Dreyfus, Shoshana; Strnadová, Iva; Pilkinton, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with severe/profound intellectual disability typically face poor communication outcomes as they are often nonverbal and need their supporters to provide for their communication needs. This review aimed to identify studies focused on the communication resources people with severe/profound intellectual disability use for…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Barriers, Affordances
Johnson, Khalilah R.; Bagatell, Nancy – Journal of Intellectual Disabilities, 2020
Institutionalized adults with profound intellectual disabilities (ID) face significant challenges to having their choice-making cultivated and supported. Based on observational and interview data from an institutional ethnographic study, this article explores how choice-making during mealtimes is acknowledged and problematized by staff. First, we…
Descriptors: Institutionalized Persons, Adults, Severe Intellectual Disability, Participation
McCausland, Darren; Murphy, Esther; McCarron, Mary; McCallion, Philip – Journal of Intellectual Disabilities, 2022
Person-centred planning (PCP) puts individuals with an intellectual disability at the centre of service and support planning, identifying how individuals wish to live their lives and what is needed to make that possible. PCP has been identified as having the potential to facilitate improved social inclusion and community participation. A…
Descriptors: Adults, Planning, Severe Intellectual Disability, Program Effectiveness
Lancioni, Giulio E.; Singh, Nirbhay N.; O'Reilly, Mark F.; Sigafoos, Jeff; Alberti, Gloria; Campodonico, Francesca; Acquaviva, Giusy; Chiariello, Valeria; Desideri, Lorenzo – International Journal of Developmental Disabilities, 2022
Objectives: The present study evaluated a new smartphone-based program to help 12 participants with intellectual disability plus visual and motor impairments to self-regulate their stimulation input (thus avoiding their dependence on staff) through simple non-verbal responses. Method: Nonconcurrent multiple baseline designs across participants…
Descriptors: Telecommunications, Handheld Devices, Visual Impairments, Physical Disabilities
Hanzen, Gineke; Waninge, Aly; van Nispen, Ruth M. A.; Vlaskamp, Carla; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: We investigated the effects of the "Care for Participation+" (CFP+) intervention on direct support professionals' (DSPs') attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled trial with two control groups…
Descriptors: Intervention, Allied Health Personnel, Caregiver Attitudes, Attitudes toward Disabilities