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Direct linkNijs, S.; Zijlmans, M.; Schuengel, C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method: A three-round Delphi procedure with international experts was undertaken to operationalise…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Self Determination, Individual Characteristics
Wessels, Marleen D.; Van Assen, Arjen A. G.; Post, Wendy J.; Van der Putten, Annette A. J. – Journal of Intellectual & Developmental Disability, 2023
Background: There are no psychometrically validated instruments available to measure motor skills of children with profound intellectual and multiple disabilities (PIMD). In this study, the construct validity and reliability (Rho) of the Motor Development List for children with PIMD (MDL-PIMD), a proxy-reported measure, was investigated. Methods:…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Psychomotor Skills, Test Validity
Wissing, Maureen B. G.; Ulgiati, Aurora M.; Hobbelen, Johannes S. M.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Dementia is increasingly prevalent in people with severe/profound intellectual disabilities. However, early detection and diagnosis of dementia is complex in this population. This study aimed to identify observable dementia symptoms in adults with severe/profound intellectual disabilities in available literature. Method: A systematic…
Descriptors: Dementia, Severe Intellectual Disability, Disability Identification, Identification
Amanda Gillooly; Dave Dagnan; Richard Hastings; Chris Hatton; Nicola McMeekin; Susie Baines; S. -A. Cooper; Lucy Crawford; David Gillespie; Jenny Miller; Andrew Jahoda – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Almost no research has been published reporting on evaluations of the effectiveness of psychological interventions for people with severe to profound intellectual disabilities and depression. This paper describes the development and initial feasibility testing of an adapted Behavioural Activation therapy (BeatIt2) for this population.…
Descriptors: Severe Intellectual Disability, Psychological Needs, Intervention, Depression (Psychology)
Maria Baranowski; Margherita Cameranesi; Javier Mignone; Lindsay McCombe; Kayla Kostal; Jenna Heschuk; Shahin Shooshtari – Journal of Intellectual & Developmental Disability, 2024
Background: Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones' community…
Descriptors: Severe Intellectual Disability, Severe Disabilities, Developmental Disabilities, Family Attitudes
Taylor Czyzewski – ProQuest LLC, 2024
The purpose of this dissertation in practice was to increase post-school success by ensuring parental/guardian education and partnerships with post school agencies and programs. Study participants consisted of the parents or guardians of 18-22 year old students with moderate to severe disabilities enrolled in the Supportive Transition Exploration…
Descriptors: Intellectual Disability, Students with Disabilities, Young Adults, Transitional Programs
Annamarie Elisabet Wyngaard; Catharina Jacoba Elizabeth Uys – Journal of Applied Research in Intellectual Disabilities, 2025
Background: When supporting learners with severe intellectual disabilities, teaching methods needs to be adapted. Vona du Toit Model of Creative Ability (VdTMoCA) aims to enhance participation and facilitate adaptive responses through targeted intervention principles. This study aimed to develop and evaluate the impact of an intervention programme…
Descriptors: Intellectual Disability, Independent Living, Severe Intellectual Disability, Students with Disabilities
Hanley, Edina; Martin, Anne-Marie; Dalton, Caroline; Lehane, Elaine – Journal of Intellectual Disabilities, 2023
People with severe/profound intellectual disability experience challenges in communicating and require their communication partners to adapt to their means of communication. Augmentative and Alternative Communication (AAC) is recognised as a potential means to meet their communication needs. Interventions need to be aimed at both the individual…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Augmentative and Alternative Communication, Intervention
Collin Shepley; R. Joseph Waddington – Intellectual and Developmental Disabilities, 2024
The participation of students with significant cognitive disabilities in accountability assessments aligned with general education standards is a heavily debated topic in the field of special education. Attempts to understand the impact of these assessments have generally been limited to correlational methods. We employed a…
Descriptors: Educational Legislation, Federal Legislation, Students with Disabilities, Severe Intellectual Disability
Wessels, Marleen D.; van der Putten, Annette A. J.; Paap, Muirne C. S. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Knowledge about the quality of assessment methods used in the support of people with profound intellectual and multiple disabilities (PIMD) is scarce. This study aimed to provide an overview of the assessment methods used in practice and to examine whether these instruments were studied for their psychometric properties for people with…
Descriptors: Foreign Countries, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Laher, Zakiyya; Dada, Shakila – Augmentative and Alternative Communication, 2023
Aided language stimulation is an augmented input strategy that facilitates the expressive and receptive language skills of persons who require augmentative and alternative communication (AAC). The aim of this study was to determine and compare the acquisition of receptive vocabulary items during implementation of aided language stimulation with…
Descriptors: Augmentative and Alternative Communication, Receptive Language, Severe Intellectual Disability, Language Acquisition
Gjermestad, Anita; Skarsaune, Synne N.; Bartlett, Ruth L. – Journal of Intellectual Disabilities, 2023
People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research--even when intending to be inclusive--tends to operate within criteria that exclude people with profound and multiple…
Descriptors: Severe Intellectual Disability, Inclusion, Research, Interpersonal Communication
Jane O'Regan Kleinert; Jaqueline F. Kearns; Judith L. Page; Harold L. Kleinert – Language, Speech, and Hearing Services in Schools, 2023
Purpose: The purpose of this article was to conduct a systematic review of the literature on teaching or increasing the use of augmentative and alternative communication (AAC) by students with significant intellectual disabilities and complex communication needs (CCNs) within inclusive school settings. Method: A systematic review of research…
Descriptors: Augmentative and Alternative Communication, Communication Disorders, Inclusion, Educational Research
Flink, Anna Rensfeldt; Broberg, Malin; Strid, Karin; Thunberg, Gunilla; Johnels, Jakob Åsberg – International Journal of Developmental Disabilities, 2023
There is limited research targeting communication interventions for children with severe/profound intellectual and multiple disabilities. This study addressed outcomes from a communication course for parents of children with severe/profound intellectual and multiple disabilities and follows up on a previous publication by Rensfeldt Flink et al.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Interpersonal Communication, Parent Child Relationship
Vandesande, Sien; Bosmans, Guy; Sterkenburg, Paula; Schuengel, Carlo; Maes, Bea – International Journal of Disability, Development and Education, 2023
Parents of children with severe disabilities have differing attachment-related support needs. An online vignette study with 25 experts, working in academia and/or clinical practice, was conducted to reflect upon the task of matching intervention components to families, based on their attachment strengths and needs. In two online rounds, the…
Descriptors: Parent Child Relationship, Attachment Behavior, Intervention, Severe Intellectual Disability
