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Direct linkAndrew Jahoda; Dave Dagnan; Richard Hastings; Amanda Gillooly; Jenny Miller; Susie Baines; Chris Hatton – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with severe to profound intellectual disabilities experience similar or higher levels of depression than those with more mild intellectual disabilities. Yet, there is an absence of evidence about how to adapt existing psychological therapies for this population. Method: A behavioural activation intervention (BeatIt) for people…
Descriptors: Intellectual Disability, Severe Intellectual Disability, Depression (Psychology), Intervention
Linn Johnels; Jenny Wilder; Simo Vehmas – Journal of Research in Special Educational Needs, 2024
The feasibility of a pedagogical approach--MultiSensory Music Drama (MSMD)--was investigated in collaboration with a teacher and a student with severe/profound intellectual and multiple disabilities (S/PIMD). Educational research for this group of learners is scarce, but research has suggested the potential of integrating music and multisensory…
Descriptors: Music Education, Drama, Multisensory Learning, Students with Disabilities
Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Dukes, Charles; Darling, Sharon M.; Rivera, Christopher J. – Research and Practice for Persons with Severe Disabilities, 2022
In this special section of "Research and Practice for Persons with Severe Disabilities" ("RPSD"), the intersection of race, ethnicity, culture, and language influences schooling (i.e., what is taught, how, and where) for students of color with significant cognitive disabilities is explored. Contemporary issues facing people of…
Descriptors: Minority Group Students, Cognitive Ability, Disabilities, Equal Education
Skarsaune, Synne Nese; Hanisch, Halvor Melbye – Research and Practice for Persons with Severe Disabilities, 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this.…
Descriptors: Self Determination, Severe Intellectual Disability, Multiple Disabilities, Civil Rights
Luca Vascelli; Vanessa Artoni; Federica Berardo – Journal of Developmental and Physical Disabilities, 2023
Three adolescents with moderate to severe intellectual disabilities who attended a clinical setting participated in this study. The effects of repeated times practice for component skills on the emission frequency of composite daily living skills such as wearing a shirt, shoes, fastening buttons, and using an iPad were investigated. We practiced…
Descriptors: Psychomotor Skills, Daily Living Skills, Adolescents, Intellectual Disability
Doyle, Carmel – British Journal of Learning Disabilities, 2021
Background: Children with severe and profound intellectual disabilities experience multiple chronic health conditions requiring a variety of medications. The aim of this study was to explore mothers' lived experience of giving medicines to children with severe and profound intellectual disabilities. Materials and Methods: A hermeneutic…
Descriptors: Severe Intellectual Disability, Chronic Illness, Comorbidity, Drug Therapy
Beadle-Brown, Julie; Beecham, Jennifer; Leigh, Jennifer; Whelton, Rebecca; Richardson, Lisa – Journal of Applied Research in Intellectual Disabilities, 2021
Background: With increasing reductions in funding for social care across many countries, the need to ensure that resources are used to best effect is becoming increasingly important, in particular for those with severe and complex needs. Methods: In order to explore the outcomes and costs of skilled support for this group of people, quality of…
Descriptors: Severe Intellectual Disability, Social Services, Program Effectiveness, Costs
Maaike Hermsen; Rianne Simons; Hennie van Veen; Angela Prudon; Lina Rooijackers; Roy Otten; Renske Koordeman – Journal of Intellectual Disabilities, 2024
Background: Staff-client relationships impact the quality of support and life of people with severe to profound intellectual disabilities and challenging behavior, but are challenging to build due to clients' intense, complex and varying support needs. The present study explores the perspectives of professionals and relatives on what affects these…
Descriptors: Interpersonal Relationship, Severe Intellectual Disability, Behavior Problems, Individual Characteristics
Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults
Rushton, Rosie; Kossyvaki, Lila – British Journal of Learning Disabilities, 2022
Background: Music is weaved within our cultures; it is ever-present within daily-life and can considerably influence our mood, well-being and relationships. This study explores parental perceptions of the role of music in the home-lives of children and young people with profound and multiple learning disabilities in the UK. It considers parental…
Descriptors: Foreign Countries, Music, Parent Attitudes, Severe Intellectual Disability
Vandesande, Sien; Bosmans, Guy; Sterkenburg, Paula; Schuengel, Carlo; Maes, Bea – Journal of Intellectual & Developmental Disability, 2022
Background: The feasibility and acceptability was explored of the newly-constructed Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities. Method: A partially mixed methods approach (with focus on the quantitative data) was used to clarify parents' and professionals' viewpoints regarding…
Descriptors: Childhood Needs, Attachment Behavior, Parents, Children
Igier, Suzanne; Valérie, Pennequin – Journal of Intellectual Disabilities, 2023
Background: Few studies have evaluated the explanatory factors of poor performance and the effects of context in adults with intellectual disabilities. The aim of this study is to assess the role of a familiar experimenter on their cognitive performance, well-being, metacognitive experiences, and social behaviors. Method: Participants with…
Descriptors: Adults, Intellectual Disability, Moderate Intellectual Disability, Severe Intellectual Disability
Torsten Hammann; Jakob Valic; Gašper Slapnicar; Mitja Luštrek – International Journal of Developmental Disabilities, 2024
Introduction: The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece…
Descriptors: Psychological Patterns, Intellectual Disability, Comorbidity, Severe Intellectual Disability
M. L. Eding; M. Meeter; C. Schuengel – Journal of Research in Special Educational Needs, 2025
Education of children with moderate to severe intellectual disabilities requires adequate assessment of their educational needs and potential to learn. Dynamic testing using analogical reasoning tasks may be a promising way to perform such an assessment. However, it remains unclear how dynamic testing with these children may be done in practice.…
Descriptors: Delphi Technique, Moderate Intellectual Disability, Severe Intellectual Disability, Foreign Countries
