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Epstein, Amy; Whitehouse, Andrew; Williams, Katrina; Murphy, Nada; Leonard, Helen; Davis, Elise; Reddihough, Dinah; Downs, Jenny – Autism: The International Journal of Research and Practice, 2019
Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all,…
Descriptors: Autism, Pervasive Developmental Disorders, Quality of Life, Children
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Davis, Elise; Mackinnon, Andrew; Davern, Melanie; Boyd, Roslyn; Bohanna, India; Waters, Elizabeth; Graham, H. Kerr; Reid, Susan; Reddihough, Dinah – Research in Developmental Disabilities: A Multidisciplinary Journal, 2013
To assess the measurement properties of a new QOL instrument, the Cerebral Palsy Quality of Life Questionnaire-Teen (CP QOL-Teen), in adolescents with cerebral palsy (CP) aged 13-18 years, examining domain structure, reliability, validity and adolescent-caregiver concordance. Based on age, 695 eligible families were invited to participate by mail.…
Descriptors: Factor Analysis, Well Being, Adolescents, Physical Health