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Where Care Converges: Uncovering Shared Experiences of Parents and Service Providers for Adults with Intellectual Disabilities in Times of Austerity
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Rachel Abigail Harrison; Jill Bradshaw; Michelle McCarthy – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Since the introduction of austerity measures in 2008, funding for care, welfare, services and support systems in the United Kingdom has been reduced. There is little research that explores the experiences of parents of adults with intellectual disabilities and service providers regarding care, relationships and social networks in times…
Descriptors: Adults, Intellectual Disability, Economic Climate, Budgeting
Social Networks and People with Intellectual Disabilities: A Systematic Review
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Harrison, Rachel Abigail; Bradshaw, Jill; Forrester-Jones, Rachel; McCarthy, Michelle; Smith, Sharon – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Despite the importance of social networks for health and well-being, relatively little is known about the ways in which adults with intellectual disabilities in the U.K. experience their social networks. Method: A systematic review was completed to identify research focused on the social networks of adults with intellectual…
Descriptors: Social Networks, Intellectual Disability, Adults, Self Concept
Groups for Parents with Intellectual Disabilities: A Qualitative Analysis of Experiences
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Gustavsson, Marie; Starke, Mikaela – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Parents with intellectual disabilities (IDs) are often socially isolated and need support. Materials and Methods: This qualitative study is based on participant observations of a group for parents with with intellectual disabilities. Data were categorized and interpreted in the framework of social capital and symbolic interactionism.…
Descriptors: Parents, Intellectual Disability, Social Support Groups, Participant Observation
Self-Reported Life Events, Social Support and Psychological Problems in Adults with Intellectual Disabilities
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Hulbert-Williams, Lee; Hastings, Richard P.; Crowe, Rachel; Pemberton, Jemma – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Several studies have reported relationships between life events and psychological problems in people with intellectual disabilities. In contrast to the general literature, data have consistently been collected via proxy informants and putative moderator variables such as social support have not been examined. Materials and Methods:…
Descriptors: Mental Retardation, Interviews, Psychology, Social Networks
The "Mother" behind the Mother: Three Generations of Mothers with Intellectual Disabilities and Their Family Support Networks
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Traustadottir, Rannveig; Sigurjonsdottir, Hanna Bjorg – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Given appropriate supports mothers with intellectual disabilities can successfully raise their children. Historically, this support has been provided by extended family members while support from formal services is a recent development. This paper examines the role of extended family members in assisting mothers with intellectual…
Descriptors: Social Support Groups, Mothers, Family (Sociological Unit), Participant Observation
"I Get by with a Little Help from My Friends": Adults with Intellectual Disability Discuss Loneliness
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McVilly, Keith R.; Stancliffe, Roger J.; Parmenter, Trevor R.; Burton-Smith, Rosanne M. – Journal of Applied Research in Intellectual Disabilities, 2006
Background: This study explored "loneliness" as experienced by adults with intellectual disability, with "intermittent" to "limited" support needs. Method: A measure of loneliness was piloted, and qualitative techniques used to develop a greater understanding of the participants' experience. Results: The Loneliness Scale proved valid and reliable…
Descriptors: Mental Retardation, Quality of Life, Social Networks, Psychological Patterns
The Social Networks of People with Intellectual Disability Living in the Community 12 Years after Resettlement from Long-Stay Hospitals
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Forrester-Jones, Rachel; Carpenter, John; Coolen-Schrijner, Pauline; Cambridge, Paul; Tate, Alison; Beecham, Jennifer; Hallam, Angela; Knapp, Martin; Wooff, David – Journal of Applied Research in Intellectual Disabilities, 2006
Background: The social inclusion of people with intellectual disabilities presents a major challenge to services. As part of a 12-year follow up of people resettled from long-stay hospitals, the size of 213 individuals' social networks and the types of social support they received were investigated, as viewed by people with intellectual…
Descriptors: Social Support Groups, Social Integration, Mental Retardation, Hospitals