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David Dobel-Ober; Paul Moloney; Sarah Millichap – British Journal of Learning Disabilities, 2024
Background: Coproduction is a fast-developing approach to patient involvement. It entails health and social care services users working as equals in partnership with providers and other public institutions to produce novel research and information, usually aimed at the improvement of service planning and delivery. Methods: This paper presents two…
Descriptors: Foreign Countries, Males, Learning Disabilities, Health Services
Gray, Ben; Kerridge, Tom – British Journal of Learning Disabilities, 2023
Background: People with learning disabilities are often left behind and ostracised in life, education, employment and in research. This article describes the importance and value that people with learning disabilities can bring when participating in co-production and lived experience research. The article reports on the inequalities and barriers…
Descriptors: Learning Disabilities, Experience, Access to Health Care, Barriers
Ned Redmore – British Journal of Learning Disabilities, 2024
Background: Service culture refers to the practices, views and values within service organisations. Developing positive cultures has been thought imperative to improving social care, though day services and their cultures remain an under-researched area. For many autistic people with profound learning disabilities, day services are the sites at…
Descriptors: Adults, Autism Spectrum Disorders, Learning Disabilities, Severe Disabilities
Cleo Barron; Sarah Parsons; Hanna Kovshoff – British Journal of Learning Disabilities, 2024
Background: Transitions into adult services for young people with complex communication needs are often experienced as challenging and rarely include the voices of young people. Methods: We piloted a person-centred method to enable one young person's (Dominic) voice to be included in his transition to adult services. An 'I am' Digital Story is a…
Descriptors: Story Telling, Experience, Adjustment (to Environment), Special Schools
Hayward, Brent A.; Poed, Shiralee; McKay-Brown, Lisa; McVilly, Keith R. – British Journal of Learning Disabilities, 2021
Background: It is necessary to understand which variables successfully contribute to the adoption of positive behaviour support (PBS) in disability services if people with disability are to experience meaningful outcomes. Methods: A systematic review of the disability support literature was undertaken, and meta-aggregation was used to synthesise…
Descriptors: Positive Behavior Supports, Disabilities, Literature Reviews, Program Implementation
Murray, George C.; McKenzie, Karen; Metcalfe, Dale; Whelan, Kathryn; Murray, Aja L. – British Journal of Learning Disabilities, 2022
Background: High staff turnover presents a challenge to the provision of good quality community-based support to people with an intellectual disability. While recent research has identified factors that are thought to be important for staff retention, their relative importance to social care staff is unknown. The aim of this study was to address…
Descriptors: Labor Turnover, Social Services, Caregivers, Intellectual Disability
Collett, Zoe; Moll, Deborah; Colston, Amanda; McKim, Jules; Elsworth, Julie – British Journal of Learning Disabilities, 2023
Background: People with a learning disability can present with complex physical and social needs, and sometimes rely on touch for communication. Historically, touch-related staff guidance has been described as risk-averse, lacking an evidence base, control-orientated and potentially harmful. This project reviews local touch-related guidance from…
Descriptors: Tactual Perception, Health Services, Social Services, Interpersonal Communication
Gustavsson, Anders; Wendelborg, Christian; Tøssebro, Jan – British Journal of Learning Disabilities, 2021
Background: In many countries, the goal of secondary education for students with intellectual disabilities is to transition to the labour market. However, research and reviews consistently show that employment rates are very low for graduates with intellectual disabilities. The aim of this article is to scrutinise the preparation for…
Descriptors: Social Services, Hidden Curriculum, Secondary School Students, Students with Disabilities
Dowson, Steve – British Journal of Learning Disabilities, 2022
UK social care policy has "traditionally" sought to minimise organisational and sector boundaries through cooperation and partnership. This discussion paper argues that there is a case for a social care system based openly on separation of powers to address the conflicts of interest that inevitably exist between the actors--notably local…
Descriptors: Public Policy, Social Services, Disabilities, Civil Rights
Yoshimi Ito; Kyoko Asakura; Shoko Sugiyama; Nozomu Takada – British Journal of Learning Disabilities, 2024
Background: People with intellectual/intellectual and physical disabilities frequently use day-service centres, an array of services that involve the provision of care and social activities during the daytime and offer homebound people with disabilities opportunities to live in their communities. While nurses working at day-service centres for…
Descriptors: Foreign Countries, Nurses, Intellectual Disability, Physical Disabilities
Maguire, Karla; Gleeson, Kate; Holmes, Nan – British Journal of Learning Disabilities, 2019
Background: Despite positive attitudes amongst support staff towards sexuality, adults with learning disabilities report being dissatisfied with the support they receive. This research aimed to explore support workers' understanding of their role supporting the sexuality of adults with learning disabilities. Method: Six support workers from…
Descriptors: Learning Disabilities, Sexuality, Positive Attitudes, Adults
Cudré-Mauroux, Annick; Piérart, Geneviève; Vaucher, Carla – British Journal of Learning Disabilities, 2019
Background: Intervention to increase self-determination of people with learning disabilities is a major issue for social care practices. This study examines relational needs of people with learning disabilities regarding self-determination in the context of the relationships they share with social care professionals. Method: We held focus group…
Descriptors: Self Determination, Learning Disabilities, Intervention, Goal Orientation
Moving On: Transitions out of Care for Young People with Learning Disabilities in England and Sweden
Roberts, Helen; Ingold, Anne; Liabo, Kristin; Manzotti, Grazia; Reeves, David; Bradby, Hannah – British Journal of Learning Disabilities, 2018
Background: Young people with learning disabilities are frequently underrepresented in research accounts. This study describes the experiences of young people moving from the care system. Methods: We scoped the English and Swedish literature for first-hand accounts and interviewed four young people with learning disabilities leaving the English…
Descriptors: Foreign Countries, Learning Disabilities, Transitional Programs, Literature Reviews
Reidy, Mary; Denieffe, Suzanne; Foran, Sinéad – British Journal of Learning Disabilities, 2018
Background: Internationally, it is known that there are gaps in cancer and screening awareness among women with intellectual disabilities. Little is known about this awareness among Irish women with intellectual disabilities. The aim of this study was to explore this awareness among these women. Materials and Methods: The study design incorporated…
Descriptors: Cancer, Screening Tests, Females, Intellectual Disability
Deville, Jane; Davies, Helen; Kane, Ros; Nelson, David; Mansfield, Paul – British Journal of Learning Disabilities, 2019
Background: There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers…
Descriptors: Parents, Older Adults, Parent Child Relationship, Adults