This paper used Social Security Administration program data from 2005 to 2019 to examine national- and state-level changes in the number of new adult supplemental security income (SSI) awardees on the autism spectrum relative to awardees with intellectual disability and other mental health disorders. We identified three main findings: the number…

This study explored predictors of service use among 174 transition-age youth (age 16-30) with an Autism Spectrum Disorder using Andersen's (J Health Soc Behav 36(1):1-10, 1995) healthcare utilization model. Family caregivers were interviewed about past 6-month use of 15 services. On average, youth used 6.1 and needed 3.2 additional services.…

Background: Cerebral palsy (CP) is one of the most common childhood disorders requiring comprehensive and coordinated care over time. This study aimed to add knowledge about health, educational and social services received by children and families throughout early childhood, with special attention on coordination services provided. Methods: The…

Background: This paper discusses findings from a study of English Local Authority (LA) Adult (ASCDs) that explored how managers use telecare. A decade earlier, a large clinical trial, the 'Whole System Demonstrator' project (WSD), funded by the Department of Health (DH) investigated telecare's effectiveness in promoting and maintaining…

Neglected in policy and the public consciousness, Alternative Provision is the expanding putty of the education sector, working within the gaps left by other agencies to re-engage children. Yet to engage children, Alternative Provision must first engage families and home visits are crucial to this process. Often triggered by absences or…

Background: People with a learning disability can present with complex physical and social needs, and sometimes rely on touch for communication. Historically, touch-related staff guidance has been described as risk-averse, lacking an evidence base, control-orientated and potentially harmful. This project reviews local touch-related guidance from…

Attention to students' socio-emotional, behavioral, and academic outcomes raises important considerations for the psychological well- being of teachers, especially Head Start teachers who often work with underserved families. This scoping review summarizes current literature on Head Start teacher psychological well-being and identifies (1) how…

We designed and distributed a survey that assessed safety concerns experienced by direct service providers (DSPs) (N = 59) of adults with intellectual and developmental disabilities (IDD) in community-based group homes at a single human services organization. Results indicated relatively few safety concerns among the respondents from a list of 25…

Care experienced students are one of the most under-represented groups in higher education (HE) in the UK. Research in this field has sought to understand why some care experienced young people successfully transition to higher education and achieve good outcomes in it, despite experiencing considerable adversities and inequalities. To date, there…

Prevalence estimates of autism spectrum disorder (ASD) point to geographic and socioeconomic disparities in identification and diagnosis. Estimating national prevalence rates can limit understanding of local disparities, especially in rural areas where disproportionately higher rates of poverty and decreased healthcare access exist. Using a small…

Context: Adoption can provide a lifetime of benefits for children. Some adoptions however, experience severe challenges resulting in disruption, with children leaving home prematurely. Method: This qualitative study in Northern Ireland used interviews with parents from thirteen families whose adoptions had disrupted, to explore their perspective…

Voices of people with disabilities in Kenya have yet to influence disability services and the issues affecting their lives. This is in part due to the dominance of disability discourses from Global North contexts from which international policies on disability such as the United Nations Convention on the Rights of People with Disabilities borrow…

This brief presents select findings from "The Conversion of Enrollment Slots from Head Start to Early Head Start (HS2EHS) Case Studies," six case studies of grant recipients that converted enrollment slots from Head Start to Early Head Start in 2021. This brief focuses on how grant recipients "assess the need for conversion."…

Although family-centeredness is a tenet of early intervention, families often report struggling to meaningfully participate in decision-making. To increase family involvement, in the United States Parent Training and Information Centers (PTIs) and service coordinators are charged with educating and empowering families to advocate for their…

In 2014, the U.S. Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. The Rule focuses on improving outcomes through person-centered services and supports. These outcomes include privacy and dignity. This study…