Caselaw that functions as law until statutes are enacted has been characteristic of legal issues surrounding the HIV (Human Immunodeficiency Virus) and AIDS (Acquired Immune Deficiency Syndrome) diseases. In most cases such caselaw has protected the civil rights of persons with HIV/AIDS under established law as well as the traditions of Western…

The special developmental needs of young children with congenital HIV (Human Immunodeficiency Virus) infection require evaluation, training, therapy, and other supports. Such services should be guided by developmentalists in a child study center in close alliance with medical, educational, and community service providers. Concerns about the…

The report describes a regionalized system of community based child health centers developed in Iowa to provide coordinated secondary level health services for children with chronic illness and handicapping conditions. The system is based on two principles: (1) Communities will be given the responsibility for determining which health services are…

The booklet presents papers from a December 1982 workshop on specific problems in caring for ventilator-dependent children (children with respiratory distress due to prematurity, low birth weight or developmental immaturity). Following excerpts from the keynote address by C. Everett Koop, the U.S. Surgeon General, model programs from Pennsylvania,…

The hemophilia community has been deeply affected by the catastrophe of AIDS (Acquired Immune Deficiency Syndrome). The use of blood products that had first restored the potential for normal survival now bring the threat of AIDS infection and fear and discrimination from others. Strong leadership has come from the National Hemophilia Foundation.…

The booklet explains ten principles of family-centered health care and six components of community based programs for children with significant medical problems. The principles are: The child and the family have basic rights of self-determination and autonomy. Health care services should be family oriented and maximize family control. Service…

The Surgeon General's report on children with special health needs proposes seven action steps needed to implement a community-based family centered health care approach. Recommended are the following actions: Pledge a national commitment to all children with special health care needs and their families; Encourage building community-based service…

Noting the health risks posed by lead exposure, especially for children under age 6, this guide provides U.S. Environmental Protection Agency (EPA) recommendations on how individuals can reduce the risk of lead exposure and prevent lead poisoning. These recommendations range from simple steps that can be done immediately to more rigorous…

This annotated bibliography of health promotion materials describes pamphlets, films, and posters for the general public and contains program guidelines, directories, and technical papers of interest to health professionals. To compile this volume, each Public Health Service agency selected, from among its publications, those which offer…

A set of two pamphlets is presented on the topic of Fetal Alcohol Syndrome and Alcohol-Related Birth Defects. "Ten Projects for Preventing Fetal Alcohol Syndrome and Other Alcohol-Related Birth Defects" provides ideas and materials for students and others to use in educating the public about the dangers of alcohol use during pregnancy.…

This informational document is intended to help answer questions commonly asked by families, professionals, and the general public concerning Down Syndrome. Medical problems associated with Down Syndrome include heart conditions, upper respiratory disorders, ear infections and hearing loss, vision/eye problems, cervical problems, and…

This fact sheet offers basic information on developing and implementing rural respite and crisis nursery programs. It first defines "respite" as temporary relief for caregivers and families of children with disabilities, chronic or terminal illnesses, and/or for children at risk of abuse and neglect. It also defines "rural" and…

This booklet contains guidelines to help families coordinate health care of a child with diabetes. The first section provides general information covering what diabetes mellitus-Type I is, the symptoms of diabetes, causes of Type I diabetes, and effects of diabetes. A section on health care focuses on the membership and functions of the Family…

This document is a six-session course designed for those individuals who provide care to their homebound elderly relatives and friends and who need practical information and skills to support their caregiving role. The course helps caregivers identify and use community services. It provides an opportunity to acquire personal care skills and…

As part of the National High Blood Pressure Education Program effort, the conference explored the implications and impact of the prevalence of hypertension in Spanish-speaking populations in California. Approximately 150 experts in health fields, representing all levels of government, public and private health care providers, consumers, and health…