The report examines chronic illness in children and considers issues and recommendations for change in public policies and programs affecting chronically ill children and their families. The background chapter notes the significance of the problem, reviews 11 diseases that are representative of the severe chronic illnesses of childhood: juvenile…

The report to the Senate on S. 2345, The Acquired Immune Deficiency Syndrome (AIDS) Service Coordination Act of 1986, recommends passage of this bill, an amendment to the Public Health Service Act, which would authorize appropriations of $40,000,000 in grants during fiscal year 1987 for demonstration projects providing such services for AIDS…

A four-stage framework for considering the development of public policy in regard to the issue of HIV (Human Immunodeficiency Virus) infection is offered. The phases are denial, irrationality, acceptance, and the development of a rational response. Federal antidiscrimination policies which include persons with HIV infections as disabled are…

The texts of three hearings on issues connected with AIDS (Acquired Immune Deficiency Syndrome) are recorded in this document. The first hearing concerned the availability and cost of the drug azidothymidine (AZT) for victims of the disease and considered such questions as what a fair price for AZT is, who will pay for people currently being…

Caselaw that functions as law until statutes are enacted has been characteristic of legal issues surrounding the HIV (Human Immunodeficiency Virus) and AIDS (Acquired Immune Deficiency Syndrome) diseases. In most cases such caselaw has protected the civil rights of persons with HIV/AIDS under established law as well as the traditions of Western…

The report describes a regionalized system of community based child health centers developed in Iowa to provide coordinated secondary level health services for children with chronic illness and handicapping conditions. The system is based on two principles: (1) Communities will be given the responsibility for determining which health services are…

Current programs to deal with childhood lead poisoning, the primary environmental disease of U.S. children, screen individual children, treat those with serious cases of lead poisoning, and subsequently return children to hazardous environments. This approach has led to repeated diagnoses of lead poisoning. This handbook is designed to convince…

The booklet presents papers from a December 1982 workshop on specific problems in caring for ventilator-dependent children (children with respiratory distress due to prematurity, low birth weight or developmental immaturity). Following excerpts from the keynote address by C. Everett Koop, the U.S. Surgeon General, model programs from Pennsylvania,…

These guidelines were developed by a joint task force of members and staff of four national associations, to be of assistance to persons concerned with the safe delivery of specialized health care in educational settings. The guidelines delineate the roles and responsibilities of personnel involved in the provision of specialized health care. They…

The paper examines policy options for schools regarding appropriate services for children with highly communicable, potentially life threatening diseases such as Acquired Immune Deficiency Syndrome (AIDS) and Herpes. Briefly considered are the school's legal responsibility, implied risk and inability, and actual risk and its control. General…

This document presents the prepared statements and witness testimony from the Congressional hearing on Alzheimer's Disease. Following an opening statement by Senator John Heinz, statements by Senators Larry Pressler and Alfonse M. D'Amato are given. Topics which are discussed include incidence of the disease, family and victim ramifications,…

Participants from five states (Colorado, Minnesota, Virginia, Washington, and Wisconsin) met to establish a national network to promote state and community-based models of comprehensive coordinated planning and service delivery to adults who survived pediatric disorders in their childhood. Results of state caucuses, which discussed and listed…

This report is a summary of the findings from the Subcommittee on Health and Long-Term Care of the United States House of Representatives Select Committee on Aging investigation of cataract surgery and the use of intraocular lenses (IOL's) in the United States. The document provides background on the definition and treatment of cataracts and…

Statements are presented which were made at this hearing to amend the Public Health Service Act to provide for the compensation of children and others who have sustained vaccine-related injury. While the hearing focused on the costs and the regulatory burden that might be imposed by the legislation, the following areas were also addressed: (1) the…

To offer public school programs that address learning needs of chronically ill children, schools must first clarify the role of education. This paper discusses major policy-relevant issues and suggests how some of these students' needs can be addressed by the schools. (DF)