This study examined the development of maternal roles in seven mothers of medically fragile, premature infants in the neonatal intensive care unit (NICU) of an urban, teaching hospital using data sources such as interviews, observations, and document review. Mothers gradually assumed caregiving roles of worrier, novice, learner and expert and…

This paper offers six guidelines to facilitate parent-professional partnerships in neonatal intensive care units and early intervention settings. The guidelines emphasize the need to individualize practices to match parent needs; involve parents; support, trust, and respect parents; adopt a strengths-based perspective; understand parents' and…

Results of five parental interviews indicated a similar process was experienced in deciding on out-of-home placements for children with complex medical needs: weariness; need for additional assistance; "triggering events" (financial concerns, lack of social supports, and difficulties with services); need for decision approval; and reflections on…

This case study describes the 2-year process of moving a young child with severe disabilities and complex medical needs from a special school setting to a special class in a regular education setting. The child had Marshall-Smith Syndrome, characterized by respiratory, pulmonary, and skeletal abnormalities, and developmental delays due to the…