Rare diseases are usually complex syndromes, which sometimes cause extensive functional impairments affecting everyday life. The number of rare diseases and of people having one is increasing. Children with rare diseases often display special education needs and require support and adapted pedagogical methods to participate and achieve academic…

Child participation currently holds a high profile within the field of educational psychology and has been the subject of increasing interest and research. The aim of this paper is to consider the potential merit in orienting the focus beyond participation in planning and decision-making and towards self-advocacy. Self-advocacy is an essential…

The United States and the World Health Organization have worked to decrease lead exposure in children, but despite these efforts lead poisoning continues to exist in industrialized and developing countries. Prevention is the only way to preclude the health, academic and behavioral problems that occur due to the effects of lead. Public awareness…

Close relationships are important throughout life, but their dynamics may change as chronic health conditions permeate the lives of older women. To understand how older women (N = 36) manage their close relationships, this study was guided by two research questions: How do older women with chronic health conditions define meaningful relationships?…

The prevalence of 15 common obesity-related chronic health conditions was examined in a convenience sample of adolescents, ages 12-18 years old, with mobility and non-mobility limitations (n=208 and 435, respectively). In both groups, overweight adolescents (BMI[greater than or equal to] 85th %ile) had a significantly higher number of…

Although research suggests why disability may cause poverty, it is not well understood why poverty may cause disability. This article presents the Poverty Disability Model, which includes four groups of factors that increase the risk that poverty will cause disability and chronic health problems. Rehabilitation interventions and counselor…

This chartbook uses the 2007 National Survey of Children's Health (NSCH) to report on recent findings on children with special health care needs (CSHCN) in the United States. The NSCH provides a unique view of CSHCN in the context of where they live, play and go to school. It also allows comparisons to children without special health care needs.…

Purpose: We assessed nursing home staff and state nursing home surveyors regarding their knowledge and attitudes about urinary incontinence, its management, and the revised federal Tag F315 guidance for urinary incontinence. Design and Methods: We conducted a questionnaire survey of a convenience sample of nursing home staff and state nursing home…

This publication is designed to help teachers, nurses and paraprofessionals meet the challenges of dealing with children who have serious medical problems. It contains information on training, health and safety, and legal rights and responsibilities. Specifically, this third edition sets out to accomplish three goals: (1) to educate American…

Evaluation of the frequency of ear infections, ear tube drainage, and deafness for 51 autistic children (ages 2-18) indicated that autistic children had a greater incidence of ear infections than matched normal peers and lower functioning children had an earlier onset of ear infections than higher functioning autistic peers. (Author)

The study evaluated neuropsychological effects of high or low phenylalanine diets on nine phenylketonuric (PKU) adolescents who had been on unrestricted diets for 2 to 11 years. Results found that PKU adolescents on unrestricted diets have a neuropsychological deficit which can be partly reversed by returning to dietary phenylalanine restricted…

The study examined the extent to which child neglect and family dysfunction have contributed to the need for hospitalization of asthmatic children. Using a measure of global functioning, psychologic morbidity is associated with medical neglect. (Author/DB)

Evaluation of object-naming utterances of articulation-disordered children (ages 3-6) found that subjects with histories of recurrent otitis media during their first 24 months evidenced stridency deletion (in consonant singletons and in consonant clusters) significantly more than did subjects with negative otitis media histories. (Author/DB)

Treatment and management of chronic disease processes on children occurs across multiple settings, placing demands for consultation and expertise on school personnel, including school psychologists. One such chronic condition in children is type I diabetes. Children with type I insulin dependent diabetes mellitus exhibit high rates of…

Discusses a project developed to gain understanding of the experiences of people suffering from a chronic pain condition with no visible symptoms. Results suggest that narrative approaches helped participants find their own strengths and means of coping and helped them find identities other than as patients. (RJM)