Rare diseases are usually complex syndromes, which sometimes cause extensive functional impairments affecting everyday life. The number of rare diseases and of people having one is increasing. Children with rare diseases often display special education needs and require support and adapted pedagogical methods to participate and achieve academic…

Background: Public preschool can provide opportunities for earlier detection of child health problems and receipt of special needs services. This is especially important for children from low-income households who disproportionately face cost barriers to obtaining health screenings and services. Objective: This study explores the possibility that…

Children with invasive mechanical ventilation (IMV)(ventilation delivered through an endotracheal tube), often require 24/7 monitoring and care by skilled caregivers in order to stay safely within the home environment. Practice standards recommend skilled in-home nursing to maintain safe monitoring practices. However, across the country, a lack of…

Certified child life specialists (CCLS) serve as an integral component of the health care team by attending to the psychosocial concerns that arise as children and their families face stressful situations. The CCLS provides individualized care to meet the developmental needs of infants, children, teens, and young adults and assists in coping with…

Purpose: Lead is a well-established environmental contaminant that over the last 50 years has become recognized as a neurotoxin with its greatest concern for the developing child (i.e. both in-utero and postnatally). What is problematic is that children exposed to lead often come from lower socioeconomic status (SES), are largely Black communities…

Background: The presence of health problems in a child is known to be negatively associated with later academic achievement, but less is known about the educational outcomes for siblings of children in poor health. The study investigated how having a sibling with health problems affects a healthy sibling's academic achievement. Methods: We…

Childhood cancer changes the lives of all that it touches. The treatment is often as harmful as the disease itself and can impact the cognitive, physical, social, and emotional development of the child. Long term effects can manifest years after treatment. This capstone was based on a vision of providing these young cancer survivors an opportunity…

It is the position of the National Association of School Nurses (NASN) that the registered professional school nurse (hereinafter referred to as school nurse) is the school staff member who has the knowledge, skills, and statutory authority to fully meet the healthcare needs of students with diabetes in the school setting. Diabetes management in…

Background: Little information exists on health of children with developmental disabilities (DDs) in the Canadian province of Manitoba. Method: The present authors linked 12 years of administrative data and compared health status, changes in health and access to health and social services between children with (n = 1877) and without (n = 5661) DDs…

School-based asthma education offers an opportunity to reach low-income children at risk for poor asthma control. "Iggy and the Inhalers" (Iggy) is an asthma education program that was implemented in a Midwest metropolitan school district. The purpose of this evaluation was to conduct a comprehensive program evaluation. Objectives…

This study examines access to, utilization of, and quality of health care for Latino children with autism and other developmental disabilities. We analyze data from the National Survey of Children with Special Health Care Needs (N = 4,414 children with autism and other developmental disabilities). Compared with White children, Latino children with…

We examined the association between state Medicaid spending for children with disabilities and the financial burden reported by families of children with autism. Child and family data were from the 2005-2006 National Survey of Children with Special Health Care Needs (n = 2,011 insured children with autism). State characteristics were from public…

We examined the association between states' legislative mandates that private insurance cover autism services and the health care-related financial burden reported by families of children with autism. Child and family data were drawn from the National Survey of Children with Special Health Care Needs (N = 2,082 children with autism). State policy…

It is the position of the National Association of School Nurses that the registered professional school nurse (hereinafter referred to as school nurse) is the only school staff member who has the skills, knowledge base, and statutory authority to fully meet the healthcare needs of students with diabetes in the school setting. Diabetes management…

The field of early care and education has come a long way in terms of culturally sensitive and anti-bias program implementation. The author has seen some amazing classrooms where talented teachers are embracing diversity, where children are learning to appreciate their own uniqueness and that of others, and everything about the program welcomes…