Children with invasive mechanical ventilation (IMV)(ventilation delivered through an endotracheal tube), often require 24/7 monitoring and care by skilled caregivers in order to stay safely within the home environment. Practice standards recommend skilled in-home nursing to maintain safe monitoring practices. However, across the country, a lack of…

Child participation currently holds a high profile within the field of educational psychology and has been the subject of increasing interest and research. The aim of this paper is to consider the potential merit in orienting the focus beyond participation in planning and decision-making and towards self-advocacy. Self-advocacy is an essential…

Over the course of the past three decades, largely due to advances in technology, there has been growth in the fields of early intervention (EI) and pediatrics for infants/toddlers with special health care needs (SHCN). This growth has also brought about a change in the relationship between pediatricians and EI service coordinators, creating an…

Changes in the living circumstances of people with learning disabilities have seen responsibility for their health become the provenance of paid-and family-carers. Thirteen semi-structured interviews were conducted with three family-carers and ten paid-carers. Findings revealed that the role of these carers was undefined, leading to difficulty in…

Objective: To examine the help preferences of employees in the Danish police who had acknowledged that they wished to change health behaviors. In addition, we explored whether preferences varied with age, gender, chronic health concerns, positive expectations of good health, and past experiences of in-house health promotion services (i.e.,…

We examined the association between state Medicaid spending for children with disabilities and the financial burden reported by families of children with autism. Child and family data were from the 2005-2006 National Survey of Children with Special Health Care Needs (n = 2,011 insured children with autism). State characteristics were from public…

This study examined the relationship between special health care needs and social-emotional and learning competence in the early years, reporting on two waves of data from the Kindergarten Cohort of "Growing up in Australia: The Longitudinal Study of Australian Children" (LSAC). Six hundred and fifty children were identified through the…

Children with special health care needs face many barriers to oral care and are at high risk for oral disease. School nurses are in a unique position to promote oral wellness in this vulnerable population. Collaboration between school nurses and dental hygiene faculty resulted in the formation of a partnership between a university-based dental…

This module is designed to teach the fundamentals of clean intermittent urinary catheterization for the disabled child, particularly in the school setting. The text includes information on proper hand washing techniques, the supplies needed, suggested settings, and the preparations required before and after the catheter is inserted into the…

Excerpts from a paper on policies affecting chronically ill children touch upon such issues as the epidemiology of chronic childhood illness, organization of health services, costs of care, and financing of care. Principles underlying public policy are suggested, and issues for change in existing services are examined. (CL)

The report examines chronic illness in children and considers issues and recommendations for change in public policies and programs affecting chronically ill children and their families. The background chapter notes the significance of the problem, reviews 11 diseases that are representative of the severe chronic illnesses of childhood: juvenile…

The article explains diabetes mellitus, giving a brief history of the disease, its description, complications, and treatment. (PHR)

This paper offers practical tips found useful in meeting the needs of children with special health problems within the classroom. It describes feeding techniques for children with gastrostomies or using nasal or oral gastric tubes. It outlines the implications of having a child with a tracheostomy in the classroom. Classroom management suggestions…

This monograph lists 500 projects receiving federal funding at the beginning of 1990 from the Office of Maternal and Child Health. For most projects the following information is provided: title, address, phone number, name of a contact person, project start and end dates, and a brief description. Projects are grouped into the following categories:…