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Ashley Scott; Ryan Gould; Liam Quidore; Keryden Koeut-Futch; Emily Bock; Prisha Sujin Kumar; Staci Christensen; Augusta Edouard; Benjamin Golden; Eden Rapp; Kaethe Sigelko; Alexis Sokoloff; Caley Versfelt; Eric Rubenstein – Journal of Applied Research in Intellectual Disabilities, 2025
Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with…
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety
Katherine McDonald; Madison Brodeur; Ariel Schwartz – Journal of Applied Research in Intellectual Disabilities, 2025
Background: We identified participant-level risks and safeguards in social-behavioural research with adults with developmental disabilities. Method: We conducted a qualitative systematic review on risks and safeguards in peer-reviewed research with adults with developmental disabilities. We identified research reporting on risks and safeguards…
Descriptors: Adults, Developmental Disabilities, Research, Risk
Derks, Suzanne D. M.; Willemen, Agnes M.; Wouda, Mirjam; Sterkenburg, Paula S. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Mentalising and stress regulation pose challenges for adults with mild to borderline intellectual disabilities (MBID), emphasising the importance of an intervention program. The study examined the effectiveness and social validity of the serious game 'You & I' in enhancing mentalising and stress regulation among adults with MBID.…
Descriptors: Educational Games, Adults, Intellectual Disability, Metacognition
Brianne Redquest; Chris A. Clark; Hangsel Sanguino; Yona Lunsky; Sue Hutton; Jonathan Weiss; Tom Davies; Carly A. McMorris – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Virtual mindfulness may be helpful for individuals with intellectual disabilities in the context of COVID-related disruptions of in-person programming, such as Special Olympics (SO). This study examined the feasibility of a virtual mindfulness intervention for SO athletes and their caregivers. Method: SO athletes (n = 44) and their…
Descriptors: Electronic Learning, Metacognition, Intellectual Disability, Athletes
Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
Watchman, Karen; Mattheys, Kate; McKernon, Michael; Strachan, Heather; Andreis, Federico; Murdoch, Jan – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use…
Descriptors: Intellectual Disability, Dementia, Comorbidity, Stress Management
Susanty, Dessy; Noel, Pia; Sabeh, Meta Saraswati; Jahoda, Andrew – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Evidence and awareness of the importance of culturally adapting psychosocial interventions is growing. The aim of this paper is to systematically review studies on cultural adaptations of psychosocial interventions for parents and their children with intellectual disabilities, in low- and middle-income countries. Methods: Studies were…
Descriptors: Intellectual Disability, Children, Parents, Intervention
Meindl, James N.; Saba, Serena; Gray, Mackenzie; Stuebing, Laurie; Jarvis, Angela – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Needle phobias are common in children and adults worldwide. One effective intervention for this phobia is exposure therapy where a participant is gradually exposed to increasing levels of the fear-evoking stimulus while differential reinforcement is applied. This intervention, however, may be difficult to implement with some medical…
Descriptors: Fear, Adults, Autism, Pervasive Developmental Disorders
Robinson, Suzanne; Hastings, Richard P.; Weiss, Jonathan A.; Pagavathsing, Jaffni; Lunsky, Yona – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Parenting an individual with intellectual and developmental disabilities (IDD) can be challenging, particularly during adulthood. It is important to better understand ways of supporting families as individuals with IDD age. Self-compassion is a potential internal coping resource for parents, and is strongly linked to positive mental…
Descriptors: Intellectual Disability, Developmental Disabilities, Coping, Well Being
McKenzie, Katherine; Ouellette-Kuntz, Hélène; Blinkhorn, Ashleigh; Démoré, Ashley – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The transition period out of the educational system can be a source of stress for parents of young adults with intellectual and developmental disabilities, as families lose the support and respite offered by schools. Materials and Methods: Using a before and after design nested within a 24-month follow-up study of parents seeking adult…
Descriptors: Young Adults, Developmental Disabilities, Transitional Programs, Intellectual Disability
Hodes, Marja W.; Meppelder, Marieke; Moor, Marleen; Kef, Sabina; Schuengel, Carlo – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Adapted parenting support may alleviate the high levels of parenting stress experienced by many parents with intellectual disabilities. Methods: Parents with mild intellectual disabilities or borderline intellectual functioning were randomized to experimental (n = 43) and control (n = 42) conditions. Parents in both groups received…
Descriptors: Intellectual Disability, Child Rearing, Parents with Disabilities, Randomized Controlled Trials
Hickey, Robert – Journal of Applied Research in Intellectual Disabilities, 2014
Aim: This study explores whether the desire to engage in work that is beneficial to others moderates the effects of stress on burnout. Method: Based on a survey of 1570 direct support professionals in Ontario, this study conducted linear regression analyses and tested for the interaction effects of prosocial motivation on occupational stress and…
Descriptors: Foreign Countries, Stress Variables, Stress Management, Burnout
Alquraini, Turki; Mahoney, Gerald – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Mothers of young children with Pervasive Developmental Disorders (PDD) and other disabilities (DD) have been reported to experience high levels of stress. This investigation examined the effects of parental stress on mother's participation in a Relationship Focused intervention (RFI). Methods: Mothers and young children who had either…
Descriptors: Investigations, Stress Variables, Child Rearing, Intervention
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