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Parental Experiences of Quality of Life When Caring for Their Children with Intellectual Disability: A Meta-Aggregation Systematic Review
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Macey Barratt; Peter Lewis; Natalie Duckworth; Natasha Jojo; Viktorija Malecka; Signe Tomsone; Dita Rituma; Nathan J. Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative…
Descriptors: Parent Attitudes, Quality of Life, Child Rearing, Parent Child Relationship
Challenges of Single Parents Raising Children with Intellectual and Developmental Disabilities
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Kim, Hyun Seung; Lee, Chung Eun; Kim, Kyung Mee – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Single-parent families with children with disabilities need greater attention given the notable increase in their number and their additional difficulties. Single parents in East Asian countries, especially, may face greater risks than their peers elsewhere, given the region's unique cultural background. Method: The study used a mixed…
Descriptors: One Parent Family, Child Rearing, Asians, Risk Assessment
Physical and Psychological Health of Family Carers Co-Residing with an Adult Relative with an Intellectual Disability
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Grey, Jillian M.; Totsika, Vasiliki; Hastings, Richard P. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Providing long-term care to an adult relative with intellectual disability can impact negatively on caregivers' health and well-being. Methods: Data were collected via online and postal questionnaires on 110 family carers' physical and psychological health, family stress and perceived positive gains from caring. Psychological…
Descriptors: Caregivers, Intellectual Disability, Adults, Family Relationship
Caring for a Child with Learning Disabilities over a Prolonged Period of Time: An Exploratory Survey on the Experiences and Health of Older Parent Carers Living in Scotland
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Cairns, Deborah; Brown, Jayne; Tolson, Debbie; Darbyshire, Chris – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The negative health impacts of prolonged caregiving are widely reported. However, there is a paucity of evidence concerning the impacts of a lifetime of caring on older parents of offspring with learning disabilities. Design and Methods: An exploratory postal survey including the Medical Outcome Study (Short Form) 36 version 2…
Descriptors: Foreign Countries, Mental Retardation, Child Rearing, Mail Surveys
Families of 30-35-Year Olds with Down's Syndrome
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Carr, Janet – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. Methods: A semi-structured interview schedule was used, including items from the…
Descriptors: Siblings, Sibling Relationship, Social Life, Quality of Life