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Direct linkAnna Hryniewiecka-Jaworska; Emily Sloper; Hayley Archer; Angus John Clarke – Journal of Applied Research in Intellectual Disabilities, 2025
Background and Methods: We report historical information from longitudinal data held in the British Isles Rett Syndrome Survey (BIRSS) concerning women of at least 40 years. This information, including comments on the quality of care, has been provided by families, carers, and clinicians. Results: Information was available on 30 women with a…
Descriptors: Foreign Countries, Adults, Females, Neurodevelopmental Disorders
Sarah J. E. Marsden; Rachael Eastham; Alexandra Kaley – Autism: The International Journal of Research and Practice, 2025
Autistic people experience a higher prevalence of self-harming behaviours than do the general population. Self-harm remains a stigmatised topic, and until recently, self-harming behaviours in autism were considered to be limited to self-injurious behaviours experienced by intellectually impaired autistic children and not to be experienced by…
Descriptors: Autism Spectrum Disorders, Adults, Self Destructive Behavior, Social Support Groups
Yeju Lin; David Mason; Colette Hirsch; Francesca Happé – Journal of Autism and Developmental Disorders, 2025
Previous research has indicated that autistic individuals report lower quality of life (QoL) than non-autistic people. It is unclear whether it is the autism traits themselves or co-occurring thinking styles or mental health difficulties that most impair QoL. This study tested a hypothesised model to explore how 'intolerance of uncertainty' (IU),…
Descriptors: Autism Spectrum Disorders, Quality of Life, Symptoms (Individual Disorders), Emotional Response
Etherson, Marianne E.; Smith, Martin M.; Hill, Andrew P.; Flett, Gordon L. – Journal of Psychoeducational Assessment, 2022
Are feelings of not mattering an antecedent of depressive symptoms, a consequence, or both? Most investigations focus exclusively on feelings of not mattering as an antecedent of depressive symptoms. Our current study examines a vulnerability model, a complication model, and a reciprocal relations model according to a cross-lagged panel model…
Descriptors: Depression (Psychology), Symptoms (Individual Disorders), Adults, Psychological Patterns
John Galvin; Abby Howes; Gareth Richards – Journal of Autism and Developmental Disorders, 2024
Purpose: Previous cross-sectional research suggests self-compassion may mediate associations between autistic traits and mental health in autistic and non-autistic adults. However, no research to date has examined these relationships longitudinally. In this study, we used a cross-lagged panel analysis to examine correlations over time between…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Self Concept, Altruism
Irene Campos-Sánchez; Eva María Navarrete-Muñoz; Dries S. Martens; Isolina Riaño-Galán; Aitana Lertxundi; Sabrina Llop; Mónica Guxens; Cristina Rodríguez-Dehli; Nerea Lertxundi; Raquel Soler-Blasco; Martine Vrijheid; Tim S. Nawrot; John Wright; Tiffany C. Yang; Rosie McEachan; Kristine Bjerve Gützkow; Vaia Lida Chatzi; Marina Vafeiadi; Mariza Kampouri; Regina Grazuleviciene; Sandra Andrusaityte; Johanna Lepeule; Desirée Valera-Gran – Journal of Attention Disorders, 2025
Objective: To explore the association between telomere length (TL) and attention deficit hyperactivity disorder (ADHD) symptoms in children at 6-12 years. Method: Data from 1,759 children belonging to the HELIX project cohorts and the Asturias, Gipuzkoa and Valencia cohorts of INMA project were included. TL was determined by blood sample using a…
Descriptors: Foreign Countries, Genetic Disorders, Attention Deficit Hyperactivity Disorder, Mothers
Alexander Häge; Kenneth K. C. Man; Sarah K. Inglis; Jan Buitelaar; Sara Carucci; Marina Danckaerts; Ralf W. Dittmann; Bruno Falissard; Peter Garas; Chris Hollis; Kerstin Konrad; Hanna Kovshoff; Elizabeth Liddle; Suzanne McCarthy; Antje Neubert; Peter Nagy; Eric Rosenthal; Edmund J. S. Sonuga-Barke; Alessandro Zuddas; Ian C. K. Wong; David Coghill; Tobias Banaschewski; ADDUCE Consortium – Journal of Attention Disorders, 2024
Objective: Short-term RCTs have demonstrated that MPH-treatment significantly reduces ADHD-symptoms, but is also associated with adverse events, including sleep problems. However, data on long-term effects of MPH on sleep remain limited. Methods: We performed a 2-year naturalistic prospective pharmacovigilance multicentre study. Participants were…
Descriptors: Sleep, Barriers, Children, Adolescents
Georgianna Moraitopoulou; Hannah Pickard; Emily Simonoff; Andrew Pickles; Rachael Bedford; Virginia Carter Leno – Autism: The International Journal of Research and Practice, 2024
The alexithymia hypothesis posits that specific aspects of the autistic socio-cognitive profile, namely emotion recognition difficulties, can be explained by the increased prevalence of alexithymia in autistic populations. However, this hypothesis has largely been tested in adults. We tested whether co-occurring alexithymia could account for…
Descriptors: Emotional Response, Autism Spectrum Disorders, Social Development, Emotional Development
Dobson, Christina; Russell, Andrew; Brown, Sally; Rubin, Greg – International Journal of Social Research Methodology, 2022
For people with symptoms that could indicate cancer, prompt presentation to a health care practitioner facilitates early diagnosis, improves survival, and is encouraged by public health agencies and cancer charities. Nevertheless, time to presentation from symptom onset (the patient interval) is known to vary widely. We report findings from a…
Descriptors: Help Seeking, Cancer, Symptoms (Individual Disorders), Foreign Countries
Laura Moore; Sarah Foley; Fionnuala Larkin – Autism: The International Journal of Research and Practice, 2025
Available research suggests autistic mothers experience greater dissatisfaction with maternity care compared to non-autistic mothers. Limited research exists exploring autistic mothers' experiences of maternity care, and no research to date has considered maternity care professionals' experiences of delivering care to autistic mothers. This…
Descriptors: Autism Spectrum Disorders, Mothers, Birth, Barriers
Siofra Bradley; Fhionna Moore; Fiona Duffy; Lili Clark; Tasha Suratwala; Pooky Knightsmith; Karri Gillespie-Smith – Autism: The International Journal of Research and Practice, 2024
The objective of this study was to explore the role that Autistic identity, sensory processing and camouflaging behaviours have on eating disorder symptomology in Autistic adults. Previous research has focused on cognitive and sensory factors to explain the association between autism and eating disorders, but the roles of social identity and…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Sensory Experience, Self Concept
Richard O. de Visser; Rachel Mosely; Julie Gamble-Turner; Laura Hull; Felicity Sedgewick; Charlotte Featherstone; Chella Quint; Eloise Freeman; Marianna Karavidas – Autism: The International Journal of Research and Practice, 2025
Autism can make menstruation and menopause and other aspects of reproductive and sexual health (RSH) more difficult. However, healthcare professionals (HCPs) often fail to provide autism-aware care, and often lack the skills or confidence to discuss RSH with patients. This study explored whether autistic people experience particular difficulties…
Descriptors: Autism Spectrum Disorders, Females, Physiology, Sexuality
Fiske, Abigail; Scerif, Gaia; Holmboe, Karla – Infant and Child Development, 2022
The COVID-19 pandemic is an unexpected and major global event, with the potential to have many and varied impacts on child development. However, the implications of the pandemic for maternal depressive symptoms, early childhood temperament dimensions, and their associations, remain largely unknown. To investigate this, questionnaires were…
Descriptors: Foreign Countries, Mothers, Depression (Psychology), Symptoms (Individual Disorders)
Cooper, Kate; Russell, Ailsa J.; Lei, Jiedi; Smith, Laura G. E. – Autism: The International Journal of Research and Practice, 2023
Autism is increasingly seen as a social identity, as well as a clinical diagnosis. Evidence suggests that autistic adults who have stronger autism social identification have better psychological well-being. Autism is a condition which impacts on social interactions, and so one's sense of autism identification may be particularly important for…
Descriptors: Autism Spectrum Disorders, Self Concept, Identification (Psychology), Anxiety
Miranda J. Brady; Christine A. Jenkins; Julie M. Gamble-Turner; Rachel L. Moseley; Margaret Janse van Rensburg; Rose J. Matthews – Autism: The International Journal of Research and Practice, 2024
Previous research indicates that menopause can be an extremely difficult transition for some autistic people. This study asks how autistic people experience menopause and how they can better access services, support and information; autistic Community Research Associates played an important role in each stage of the research. Online focus groups…
Descriptors: Autism Spectrum Disorders, Experience, Females, Physiology
