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Rachel D'Sa; Ian Fletcher; Stephen Field – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Research suggests that a better awareness of how staff who directly support people with intellectual disabilities experience their working relationships, will contribute to understanding staff wellbeing and the quality of care they offer. This study aimed to gain insights into the lived experiences of support workers in supported…
Descriptors: Adults, Intellectual Disability, Caregivers, Well Being
Haya Salmón, Ignacio; Rojas Pernia, Susana – Journal of Applied Research in Intellectual Disabilities, 2021
Background: In this paper, we illustrate the extent to which building an inclusive research team and the selection of a research topic, based on a collaborative group approach, constitute key elements of inclusive research. Method: The selection and analysis of activities and methodological strategies, extracted from the recordings of the research…
Descriptors: Foreign Countries, Intellectual Disability, Inclusion, Research Projects
Lokman, Suzanne; van Oorsouw, Wietske M. W. J.; Didden, Robert; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Studies about teams of staff supporting people with intellectual disability have focused on team performance of existing teams. This study aimed to examine important factors in the process of setting up a new team of support staff. Specifically, we considered the process for a team that supports service users with mild intellectual…
Descriptors: Intellectual Disability, Behavior Disorders, Teamwork, Caregivers
Zarotti, Nicolò; Hudson, Clive; Human, Hannah-Rose; Muratori, Greco; Fisher, Paul – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disability often receive diagnoses which may complicate their clinical care. Among these, personality disorder diagnoses are still considered contentious. Little is also known on the perspectives of staff caring for people with intellectual disability who have received a personality disorder diagnosis. Methods:…
Descriptors: Health Personnel, Intellectual Disability, Personality Problems, Comorbidity
Ingham, Barry; Bentley, Alice; Rhodes, Jenny; Dagnan, Dave – Journal of Applied Research in Intellectual Disabilities, 2020
Background: This article describes the development and use of the Formulation Understanding Measure to evaluate team formulation with staff supporting people with intellectual disabilities. Method: A quantitative design with an opportunistic sample was used to evaluate the psychometric properties of the Formulation Understanding Measure (FUM)…
Descriptors: Intellectual Disability, Psychometrics, Test Construction, Teamwork
Hwang, I-Ting; Hallock, Taye M.; Schwartz, Ariel E.; Roth, Stephanie; Pfeiffer, Beth; Kramer, Jessica M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We conducted a rapid scoping review to identify how inclusive research teams use technology during the research process that could support remote collaboration during public health emergencies like the COVID-19 pandemic. Method: We searched three databases and conducted a hand search. Two independent reviewers screened 1498 abstracts…
Descriptors: Technology, Research, Cooperation, Inclusion
Shankar, Rohit; Wilcock, Mike; Deb, Shoumitro; Goodey, Rebecca; Corson, Eve; Pretorius, Charlotte; Praed, Georgina; Pell, Amanda; Vujkovic, Dee; Wilkinson, Ellen; Laugharne, Richard; Axby, Sharon; Sheehan, Rory; Alexander, Regi – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Antipsychotic medications are used among 19%--58% of adults with intellectual disabilities to manage challenging behaviour against the NICE guideline recommendations. Studies show that it is possible to completely withdraw antipsychotics in about one third of adults with intellectual disabilities and a dose reduction of 50% or more in…
Descriptors: Drug Therapy, Adults, Intellectual Disability, Behavior Modification
Humphreys, Lincoln; Bigby, Christine; Iacono, Teresa – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Research has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim was to examine dimensions of group home culture as predictors of QOL outcomes. Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of culture in 23 group…
Descriptors: Quality of Life, Intellectual Disability, Group Homes, Caregiver Attitudes
James, Deborah Michelle; Fisher, Sue; Vincent, Sharon – Journal of Applied Research in Intellectual Disabilities, 2021
Introduction: The United Kingdom's Department for Education's advice on behaviour focuses on the power of staff and the strength of the policy in challenging behaviour, via rules, sanctions and rewards. We designed a video-feedback intervention for staff teams in a special educational setting who were working with children with intellectual…
Descriptors: Foreign Countries, Behavior Problems, Intervention, Special Education
Martin, Lynn; Grandia, Philip; Ouellette-Kuntz, Hélène; Cobigo, Virginie – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Person-directed planning (PDP) is an approach to planning supports that aims to redistribute power from the service system to individuals with intellectual and developmental disabilities (IDD) and natural supports, improve relationships and build community. To do this, the right people with the right attitudes engaging in the right…
Descriptors: Intellectual Disability, Developmental Disabilities, Participative Decision Making, Planning
Unwin, Gemma; Deb, Shoumitro; Deb, Tanya – Journal of Applied Research in Intellectual Disabilities, 2017
Background: In the UK, people with intellectual disabilities who exhibit aggressive behaviour often receive community-based specialist health services from a community learning disability team (CLDT). Our aim was to estimate costs associated with this provision and to identify predictors of higher costs. Method: Costs were estimated for 60 adults…
Descriptors: Foreign Countries, Intellectual Disability, Aggression, Predictor Variables
Bigby, Christine; Frawley, Patsie; Ramcharan, Paul – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour. Method: A comprehensive…
Descriptors: Mental Retardation, Inclusion, Participatory Research, Teamwork
Stevenson, Miriam – Journal of Applied Research in Intellectual Disabilities, 2014
Background: There is comparatively little published research that transparently charts the contribution of people with an intellectual disability to a collaborative research process. This paper illustrates the process of data analysis in a project located within the Emancipatory Disability Research (EDR) paradigm. Materials and Methods: Textual…
Descriptors: Data Analysis, Participatory Research, Down Syndrome, Action Research
Bigby, Christine; Frawley, Patsie; Ramcharan, Paul – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Funding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches. Method: This study proposes one…
Descriptors: Participatory Research, Inclusion, Mental Retardation, Self Advocacy
Chapman, Rohhss – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The role of the support worker in self-advocacy groups for people with intellectual disability is pivotal in setting the scene for empowerment. However, despite the growing importance of the role, it has attracted very little scrutiny. Method: The study developed an inclusive team approach working alongside researchers labelled with…
Descriptors: Self Advocacy, Participatory Research, Inclusion, Mental Retardation
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