Publication Date
| In 2025 | 1 |
| Since 2024 | 1 |
| Since 2021 (last 5 years) | 1 |
| Since 2016 (last 10 years) | 2 |
| Since 2006 (last 20 years) | 3 |
Descriptor
| Terminal Illness | 3 |
| Intellectual Disability | 2 |
| Adults | 1 |
| Allied Health Personnel | 1 |
| Barriers | 1 |
| Caregiver Attitudes | 1 |
| Caregiver Training | 1 |
| Caregivers | 1 |
| Caring | 1 |
| Communication Skills | 1 |
| Death | 1 |
| More ▼ | |
Source
| Journal of Applied Research… | 3 |
Author
| Amanda Cresswell | 1 |
| Andrea Bruun | 1 |
| Bernal, Jane | 1 |
| Dodd, Philip | 1 |
| Elizabeth Tilley | 1 |
| Finlayson, Janet | 1 |
| Gemma Allen | 1 |
| Guerin, Suzanne | 1 |
| Irene Tuffrey-Wijne | 1 |
| Jo Giles | 1 |
| Lam, Claire Kar Kei | 1 |
| More ▼ | |
Publication Type
| Journal Articles | 3 |
| Reports - Research | 3 |
Education Level
| Adult Education | 1 |
Audience
Location
| United Kingdom | 1 |
Laws, Policies, & Programs
Assessments and Surveys
What Works Clearinghouse Rating
Peer reviewed
Direct linkIrene Tuffrey-Wijne; Andrea Bruun; Elizabeth Tilley; Jo Giles; Sarah Gibson; Amanda Cresswell; Richard Keagan-Bull; Leon Jordan; Gemma Allen; Sarah Swindells; Nicola Payne; Rhidian Hughes; Rebecca Anderson-Kittow – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…
Descriptors: Terminal Illness, Older Adults, Planning, Intellectual Disability
Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…
Descriptors: Caring, Mental Retardation, Focus Groups, Caregiver Attitudes
