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Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals with Angelman Syndrome
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Zigler, Christina K.; Lin, Li; McFatrich, Molly; Lucas, Nicole; Gordon, Kelly L.; Jones, Harrison N.; Berent, Allyson; Panagoulias, Jennifer; Evans, Paula; Reeve, Bryce B. – American Journal on Intellectual and Developmental Disabilities, 2023
There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of…
Descriptors: Genetic Disorders, Test Validity, Observation, Communication Skills
The French Version of the DABS: Adaptation Process and Preliminary Field Test
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von Rotz, Lorna; Courbois, Yannick; Des Portes, Vincent; Lacroix, Agnès; Reymond, Marie-Pierre; Tassé, Marc J.; Touil, Nathalie; Tsao, Raphaele; Straccia, Claudio – American Journal on Intellectual and Developmental Disabilities, 2023
The aim of this study was to develop a transcultural adaptation of the Diagnostic Adaptive Behavior Scale (DABS) in French and to perform a field evaluation of the adapted version of the tool (DABS-F). Eight experts in intellectual and developmental disabilities (IDD) and two professional translators formed two committees to translate the…
Descriptors: Diagnostic Tests, Behavior Rating Scales, French, Intellectual Disability
Development of a New Attention Rating Scale for Children with Intellectual Disability: The Scale of Attention in Intellectual Disability (SAID)
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Freeman, Nerelie C.; Gray, Kylie M.; Taffe, John R.; Cornish, Kim M. – American Journal on Intellectual and Developmental Disabilities, 2015
Difficulties with attention, impulsivity, and hyperactivity are thought to be as common among children with intellectual disability (ID) as they are in children without ID. Despite this, there is a lack of scales to specifically assess ADHD symptomatology in children and adolescents with ID. This article describes the development and evaluation of…
Descriptors: Attention Deficit Hyperactivity Disorder, Mental Retardation, Comorbidity, Symptoms (Individual Disorders)
Feasibility, Reproducibility, and Clinical Validity of the Pediatric Anxiety Rating Scale--Revised for Fragile X Syndrome
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Russo-Ponsaran, Nicole M.; Yesensky, Jessica; Hessl, David; Berry-Kravis Elizabeth – American Journal on Intellectual and Developmental Disabilities, 2014
Fragile X syndrome (FXS) is the most common inherited cause of intellectual disability and the most common known genetic cause of autism. FXS is associated with psychiatric impairments, including anxiety disorders. There is a paucity of well-developed measures to characterize anxiety in FXS. However, such scales are needed to measure therapeutic…
Descriptors: Genetic Disorders, Children, Anxiety, Anxiety Disorders
Reliability and Validity of the Pediatric Quality of Life Inventory with Individuals with Intellectual and Developmental Disabilities
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Viecili, Michelle A.; Weiss, Jonathan A. – American Journal on Intellectual and Developmental Disabilities, 2015
The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability…
Descriptors: Mental Retardation, Developmental Disabilities, Children, Quality of Life
Development of the Adult Scale of Hostility and Aggression: Reactive-Proactive (A-SHARP)
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Matlock, Scott Thomas; Aman, Michael G. – American Journal on Intellectual and Developmental Disabilities, 2011
In this study, the authors developed the Adult Scale of Hostility and Aggression Reactive-Proactive (A-SHARP). Sixty-one caregivers rated 512 individuals with intellectual and developmental disabilities on the A-SHARP. Exploratory factor analysis revealed 5 factors on the Problem Scale: (a) Verbal Aggression, (b) Physical Aggression, (c) Hostile…
Descriptors: Psychological Patterns, Aggression, Bullying, Measures (Individuals)
Utility of the Rosenberg Self-Esteem Scale
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Davis, Clare; Kellett, Stephen; Beail, Nigel – American Journal on Intellectual and Developmental Disabilities, 2009
The Rosenberg Self-Esteem Scale (RSES) continues to be used to purportedly measure self-esteem of people with intellectual disabilities, despite the lack of sound evidence concerning its validity and reliability when employed with this population. The psychometric foundations of the RSES were analyzed here with a sample of 219 participants with…
Descriptors: Mental Retardation, Measures (Individuals), Psychometrics, Self Esteem