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Jakub Niedbalski – Journal of Intellectual Disabilities, 2024
Introduction/background: This study aims to determine the impact of a person with profound intellectual and multiple disabilities on peer relationships of their siblings. Methods: Information obtained from typically developing siblings of individuals with profound intellectual and multiple disabilities served as research material for this study.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Peer Relationship, Siblings
Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
den Boer, M. C.; Voermans, M. A. C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods: A qualitative study using three case studies. Transcripts were analysed using Interpretative…
Descriptors: Mothers, Young Adults, Severe Intellectual Disability, Multiple Disabilities
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – International Journal of Developmental Disabilities, 2024
Families with a child with profound intellectual and multiple disabilities (PIMD) have to manage the child's pervasive support needs. To ensure that families are able to manage these needs, they should be properly supported. However, knowledge about the specific support needs of these families is sparse and fragmented, nor is it known if and which…
Descriptors: Family Needs, Children, Severe Intellectual Disability, Multiple Disabilities
Schwartz, Ariel E.; Kramer, Jessica M.; Rogers, E. Sally; McDonald, Katherine E.; Cohn, Ellen S. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers. Methods: We conducted exploratory…
Descriptors: Mentors, Intervention, Program Development, Peer Relationship
Alsuhaibani, Aseel S.; Evmenova, Anya S.; Graff, Heidi J.; Duke, Jodi M. – Journal of International Special Needs Education, 2021
There is limited recognition of the concept of self-determination in Middle Eastern cultures. Consequently, there are no adapted measures of self-determination for Arabic adolescents with intellectual disabilities, learning disabilities, or multiple disabilities (intellectual disability and physical impairment). The purpose of this study was to…
Descriptors: Foreign Countries, Self Determination, Females, Adolescents
Heräjärvi, Nina U.; O. Leskinen, Markku; A. Pirttimaa, Raija; J. Jokinen, Kimmo; A. Arvio, Maria – European Journal of Special Needs Education, 2020
Prior studies have shown that young adults with severe physical and multiple disabilities are less likely to complete upper secondary education. This study aimed to identify whether these students' type of multiple disability, gender, location and literacy skills were associated with completion of upper secondary education. The participants were…
Descriptors: Foreign Countries, Predictor Variables, Severe Disabilities, Physical Disabilities
Qian, Xueqin; Johnson, David R.; Wu, Yi Chen; LaVelle, John; Thurlow, Martha L.; Davenport, Ernest – Research and Practice for Persons with Severe Disabilities, 2020
This study uses data from the National Longitudinal Transition Study 2012 to examine predictors at the individual, family, and school levels associated with parental expectations toward postsecondary education among students with significant support needs, including those with autism spectrum disorder, intellectual disability, and multiple…
Descriptors: Longitudinal Studies, Special Education, Transitional Programs, Students with Disabilities
Griffiths, Colin; Smith, Martine – Journal of Intellectual Disabilities, 2017
Interaction between two people may be construed as a continuous process of perception and action within the dyad. A theoretical framework is proposed in this article that explains the concepts and processes which comprise the interaction process. The article explores the transactional nature of interaction, through analysis of narrative data from…
Descriptors: Interaction, Severe Intellectual Disability, Interpersonal Relationship, Grounded Theory
Walker, Ellen M.; Crawford, Frances; Leonard, Helen – Journal of Intellectual & Developmental Disability, 2014
Background: People who have profound intellectual and multiple disabilities face significant challenges to participating in their community and are reported to have few friends. In this paper, the issue of how this is addressed by parent-carers of young women with Rett syndrome is explored. Method: Transcripts of in-depth interviews with 6…
Descriptors: Parents, Genetic Disorders, Daughters, Interpersonal Relationship
Copeland, Susan R., Ed.; Keefe, Elizabeth B., Ed. – Brookes Publishing Company, 2018
What are today's best methods for teaching literacy skills to students with complex support needs--including autism, intellectual disability, and multiple disabilities? This comprehensive guidebook has up-to-date, evidence-based answers for pre- and in-service educators. Developed by Copeland and Keefe, the experts behind the landmark book…
Descriptors: Literacy Education, Disabilities, Autism, Intellectual Disability
National Dissemination Center for Children with Disabilities, 2012
Every year, under the federal law known as the Individuals with Disabilities Education Act (IDEA), millions of children with disabilities receive special services designed to meet their unique needs. Early intervention services are provided through the state to infants and toddlers with disabilities under three years of age and their families. For…
Descriptors: Disabilities, Educational Legislation, Equal Education, Federal Legislation