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Beth Tarleton; Katy Burch – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This paper recognises that there has been a long history of research into support for parents with intellectual disabilities in England and a helpful approach to integrating adults with intellectual disabilities in society called "Valuing People." This focus has now faded. Method: The paper draws together findings from three…
Descriptors: Parents with Disabilities, Intellectual Disability, Adults, Social Services
Agnieszka Wolowicz; Katarzyna Cwirynkalo – Journal of Applied Research in Intellectual Disabilities, 2025
Background: For many people with intellectual disabilities, the parenting role is inaccessible and/or constrained. This study provides insight into the lived experiences of parents with intellectual disabilities regarding violence and limiting their rights to parenthood in Poland. Method: Twenty-seven parents with intellectual disabilities who…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Child Rearing
Anna V. Oppenheimer; Marc G. Weisskopf; Kristen Lyall – Journal of Autism and Developmental Disorders, 2024
Purpose: The Social Responsiveness Scale (SRS) is frequently used in research settings to measure characteristics associated with autism spectrum disorders (ASD). A short version has been developed but not yet tested for certain properties of the full SRS, such as familiality. The purpose of this study was to determine if prior familiality…
Descriptors: Autism Spectrum Disorders, Genetics, Heredity, Children
Margaret Spencer; Susan Collings; Hannah Wilkinson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents with intellectual disability experience high rates of child removal, which affects their well-being. Method: Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe…
Descriptors: Grief, Parents with Disabilities, Intellectual Disability, Child Welfare
Beth Tarleton; Gillian MacIntyre; Danielle Turney; Rhian Fawcett – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents in England with an intellectual disability may be eligible for support with parenting from Local Authority's Adult services under the Care Act (2014). Method: This study investigated how adult social workers support these parents through 18 interviews with managers and commissioners and focus groups with 52 social workers,…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Social Services
Tommie Forslund; Sandra Melander; Lydia Springer; Laila Dahlström Stolpe; Karin Jöreskog – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with…
Descriptors: Parents with Disabilities, Intellectual Disability, Resources, Allied Health Personnel
Eva Wilmots; Kate Theodore – British Journal of Learning Disabilities, 2025
Background: People with learning disabilities may be at a higher risk of attachment difficulties than the general population. Fathers are underrepresented in the literature on parents with learning disabilities. This study aimed to gather an in-depth understanding of fathers with learning disabilities' perceptions of developing an attachment with…
Descriptors: Fathers, Parent Child Relationship, Parents with Disabilities, Parent Attitudes
Sarah Hampton; Carrie Allison; Simon Baron-Cohen; Rosemary Holt – Journal of Autism and Developmental Disorders, 2024
Qualitative studies of autistic people's pregnancy experiences have indicated sensory and communication related barriers to accessing adequate prenatal healthcare. However, quantitative work on the topic is scarce. This online survey study explored pregnancy experiences among 417 autistic and 524 non-autistic people. Compared with non-autistic…
Descriptors: Autism Spectrum Disorders, Pregnancy, Adults, Parents with Disabilities
Khanolainen, Daria; Salminen, Jenni; Eklund, Kenneth; Lerkkanen, Marja-Kristiina; Torppa, Minna – Reading Research Quarterly, 2023
By investigating children whose parents have dyslexia, family risk (FR) studies are expanding our understanding of the intergenerational transmission of dyslexia. These studies, however, vary in their identification of FR, and how the use of different identification methods influences research findings and conclusions is yet to be systematically…
Descriptors: Dyslexia, Parent Background, Parents with Disabilities, Risk Assessment
Emiko Tanaka; Kinuko Sugiura; Marja W. Hodes; Maurice A. Feldman – Journal of Applied Research in Intellectual Disabilities, 2025
Background: While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan,…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Research
S. Collings; G. Hindmarsh; H. Wilkinson; G. Llewellyn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups. Method: A systematic review of population-level studies on parents with intellectual disability was undertaken from January…
Descriptors: Parents with Disabilities, Mothers, Intellectual Disability, Participant Characteristics
Maurice A. Feldman; Amanda Cappon; Kay Corbier; Vicky Caruana; Mechane Laronde; Kendra Thomson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns. Method: Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key…
Descriptors: Parent Education, Parents with Disabilities, Intellectual Disability, Neonates
Joany Tremblay; Elise Douard; Marc J. Lanovaz – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although many parents with intellectual disability (ID) demonstrate good parenting practices, some parents experience difficulties in managing challenging behaviours. One potential solution to this issue involves using The Family Game, a program designed to teach parents with ID how to manage challenging behaviours in their child.…
Descriptors: Parents with Disabilities, Intellectual Disability, Parenting Skills, Educational Games
MacLeod, Alison M.; Smart, Cordet; Keohane, Peter; Dallos, Rudi; Cox, Kathy J. – British Journal of Learning Disabilities, 2023
Background: Despite a growing body of literature about parents with learning disabilities; there is a paucity of research about experiences of parenting after the removal of a child/children. This study aimed to fill this gap, examining the experiences of that parenting in this context. Method: A multiperspective interpretative phenomenological…
Descriptors: Mothers, Learning Disabilities, Parents with Disabilities, Child Custody
Stefánsdóttir, Sara; Sigurjónsdóttir, Hanna Björg; Rice, James – British Journal of Learning Disabilities, 2023
Background: Many parents with learning disabilities find themselves locked in a struggle with child protection authorities to retain custody of their children. This struggle is one against deeply entrenched prejudices as well as social arrangements that often deprive parents of needed resources. This in-depth case study explores the contours of…
Descriptors: Parents with Disabilities, Learning Disabilities, Child Custody, Parent Rights

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