Background: People with intellectual disabilities are at much higher risk of preventable deaths compared to the general community. However, studies identifying the cause of death in people with intellectual disability are generally based on one primary cause which is frequently attributed to the person's disability. Therefore, the aim of this…

Hypoxia-ischaemia (HI) can result in structural brain abnormalities, which in turn can lead to behavioural deficits in various cognitive and motor domains, in both adult and paediatric populations. Cardiorespiratory arrest (CA) is a major cause of hypoxia-ischaemia in adults, but it is relatively rare in infants and children. While the effects of…

Background: Including people with severe/profound intellectual disabilities as research participants challenges researchers due to their diverse abilities to participate and express themselves. Ensuring the rigour of the research and the credibility of the findings presents a challenge. Methods: We use examples from our research to demonstrate…

Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…

Background: Many people with disability experience harm in everyday interactions that can leave them feeling insulted, degraded, silenced, or rejected. We adopt the term "everyday harm" to describe this underexplored form of harm. Method: The purpose of this scoping review was to assess how the literature on microaggression and emotional…

Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…

Core vocabulary is defined as "lexical items that are accepted as being central and indispensable to language use" (Bell, 2012, p. 1). Use of core vocabulary is common amongst professionals who teach augmentative and alternative communication (AAC) to individuals with disabilities. Although the use of AAC is often classified as an…

Social capital is the idea that one's relationships and social networks serve as a form of capital, operating as reciprocal networks of material, financial, social, and emotional resources and support. Social capital can be a powerful concept to help increase people with intellectual and developmental disabilities' (IDD's) inclusion, social ties,…

Background: Sexual violence against women with intellectual disabilities is complex and often underreported due to systemic, social, and cultural barriers. The purpose of this paper is to analyze the cultural conditions regarding the sexuality of women with intellectual disabilities that significantly limit the disclosure of sexual violence…

Background: To date, no studies have examined the prevalence of hoarding behaviour and domestic squalor among individuals with mild intellectual disability. To address this gap, we conducted a prevalence study within a population supported by a medium-sized care organisation in the Netherlands. Method: Data were collected on 437 individuals with…

Introduction: Children with intellectual disabilities face challenges in emotion regulation and empathy, which can affect their social inclusion. However, little is known about the links between these domains in this population. This study aimed (1) to examine the relationship between emotion regulation and affective, cognitive and behavioural…

This qualitative phenomenological study focused on determining and describing teachers' lived experiences in implementing inclusion for students with significant cognitive disabilities. Inclusion as an educational practice entails that special education students are provided access to the general education curriculum. While progress has been noted…

Introduction: The assessment of well-being is crucial for measuring the effects of psychosocial interventions in people with intellectual disabilities. The aim of this study was to adapt and validate a measure of integrative well-being, the Pemberton Happiness Index (PHI) to use it specifically for this population. Methods: The Pemberton Happiness…

Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe…

Introduction: Crisis intervention aims to prevent hospital admissions by providing rapid assessment and intensive support in the community. Interest is growing in the potential of crisis care for people with intellectual disabilities who often have co-occurring psychiatric disorders and challenging behaviors. They are at high risk for admission to…