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Beth Tarleton; Katy Burch – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This paper recognises that there has been a long history of research into support for parents with intellectual disabilities in England and a helpful approach to integrating adults with intellectual disabilities in society called "Valuing People." This focus has now faded. Method: The paper draws together findings from three…
Descriptors: Parents with Disabilities, Intellectual Disability, Adults, Social Services
Agnieszka Wolowicz; Katarzyna Cwirynkalo – Journal of Applied Research in Intellectual Disabilities, 2025
Background: For many people with intellectual disabilities, the parenting role is inaccessible and/or constrained. This study provides insight into the lived experiences of parents with intellectual disabilities regarding violence and limiting their rights to parenthood in Poland. Method: Twenty-seven parents with intellectual disabilities who…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Child Rearing
Anna V. Oppenheimer; Marc G. Weisskopf; Kristen Lyall – Journal of Autism and Developmental Disorders, 2024
Purpose: The Social Responsiveness Scale (SRS) is frequently used in research settings to measure characteristics associated with autism spectrum disorders (ASD). A short version has been developed but not yet tested for certain properties of the full SRS, such as familiality. The purpose of this study was to determine if prior familiality…
Descriptors: Autism Spectrum Disorders, Genetics, Heredity, Children
Margaret Spencer; Susan Collings; Hannah Wilkinson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents with intellectual disability experience high rates of child removal, which affects their well-being. Method: Participatory action research (PAR) was undertaken with eight parents with intellectual disability who had children removed from their care. Parents were interviewed before and after the PAR. Three themes emerged: a safe…
Descriptors: Grief, Parents with Disabilities, Intellectual Disability, Child Welfare
Sarah Hampton; Carrie Allison; Simon Baron-Cohen; Rosemary Holt – Journal of Autism and Developmental Disorders, 2024
Qualitative studies of autistic people's pregnancy experiences have indicated sensory and communication related barriers to accessing adequate prenatal healthcare. However, quantitative work on the topic is scarce. This online survey study explored pregnancy experiences among 417 autistic and 524 non-autistic people. Compared with non-autistic…
Descriptors: Autism Spectrum Disorders, Pregnancy, Adults, Parents with Disabilities
Khanolainen, Daria; Salminen, Jenni; Eklund, Kenneth; Lerkkanen, Marja-Kristiina; Torppa, Minna – Reading Research Quarterly, 2023
By investigating children whose parents have dyslexia, family risk (FR) studies are expanding our understanding of the intergenerational transmission of dyslexia. These studies, however, vary in their identification of FR, and how the use of different identification methods influences research findings and conclusions is yet to be systematically…
Descriptors: Dyslexia, Parent Background, Parents with Disabilities, Risk Assessment
Emiko Tanaka; Kinuko Sugiura; Marja W. Hodes; Maurice A. Feldman – Journal of Applied Research in Intellectual Disabilities, 2025
Background: While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan,…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Research
S. Collings; G. Hindmarsh; H. Wilkinson; G. Llewellyn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups. Method: A systematic review of population-level studies on parents with intellectual disability was undertaken from January…
Descriptors: Parents with Disabilities, Mothers, Intellectual Disability, Participant Characteristics
Maurice A. Feldman; Amanda Cappon; Kay Corbier; Vicky Caruana; Mechane Laronde; Kendra Thomson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study evaluated the Step-by-Step Parenting Program (SBSPP) to prepare expectant parents with intellectual disabilities to care for their newborns. Method: Two expectant parents with intellectual disabilities were seen once or twice weekly in their homes for about 2 h over 16 and 20 weeks (21 and 27 sessions), respectively. The key…
Descriptors: Parent Education, Parents with Disabilities, Intellectual Disability, Neonates
Joany Tremblay; Elise Douard; Marc J. Lanovaz – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although many parents with intellectual disability (ID) demonstrate good parenting practices, some parents experience difficulties in managing challenging behaviours. One potential solution to this issue involves using The Family Game, a program designed to teach parents with ID how to manage challenging behaviours in their child.…
Descriptors: Parents with Disabilities, Intellectual Disability, Parenting Skills, Educational Games
MacLeod, Alison M.; Smart, Cordet; Keohane, Peter; Dallos, Rudi; Cox, Kathy J. – British Journal of Learning Disabilities, 2023
Background: Despite a growing body of literature about parents with learning disabilities; there is a paucity of research about experiences of parenting after the removal of a child/children. This study aimed to fill this gap, examining the experiences of that parenting in this context. Method: A multiperspective interpretative phenomenological…
Descriptors: Mothers, Learning Disabilities, Parents with Disabilities, Child Custody
Stefánsdóttir, Sara; Sigurjónsdóttir, Hanna Björg; Rice, James – British Journal of Learning Disabilities, 2023
Background: Many parents with learning disabilities find themselves locked in a struggle with child protection authorities to retain custody of their children. This struggle is one against deeply entrenched prejudices as well as social arrangements that often deprive parents of needed resources. This in-depth case study explores the contours of…
Descriptors: Parents with Disabilities, Learning Disabilities, Child Custody, Parent Rights
Suze van Wijngaarden; Marja W. Hodes; Leo Cardinaal; Mark Koning; Alice Schippers – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families of parents with intellectual disabilities still face discrimination, stigma and inadequate support, placing them in vulnerable positions. Social assistive robotics offers promising support. This study investigates the possible impact of social assistive robotics on family quality of life (FQoL). Method: An inclusive, iterative…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Social Bias
Sandra Thom-Jones; Imogen Melgaard; Chloe S. Gordon – Journal of Autism and Developmental Disorders, 2025
Autistic mothers remain under-represented in parental and autism research despite the associated physical and psychosocial challenges that accompany the transition to motherhood. Extant literature suggests autistic mothers experience sensory difficulties, communication challenges, stigma, and comorbidities as difficulties, but these studies have…
Descriptors: Autism Spectrum Disorders, Mothers, Parents with Disabilities, Symptoms (Individual Disorders)
Munazza Tahir; Virginie Cobigo – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The current literature has established that prejudice in child protection cases with parents with intellectual disabilities continues to persist. However, complexities of these cases are not well-understood from the perspective of child protection workers. This study aimed to identify the needs of child protection workers and their…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Child Care