The manual covers the design and implementation of respite care services for families with developmentally disabled members. An introductory chapter examines the concept of respite care, notes the benefits for families, providers, and community residential programs, and places the service as one part of a comprehensive array of family support…

In spite of the growing awareness and development of respite services, many families in need of them have little or no access. This is especially true for families whose children have emotional handicaps. A rationale for respite services supports parents' entitlement to respite care, its importance to all family members, and its help in improving…

The paper examines issues of respite care specifically as they relate to developmentally disabled persons in Minnesota. A review of the literature focuses upon the status of respite care services in the state as well as the need for respite care and its role in an array of family support services. Family services are described in terms of those in…

A survey of preschool children to establish the incidence of autistic or autistic-like behavior and unmet needs was carried out in the Lower Mainland of British Columbia. Forty-eight children ages two to seven were identified (3.8 boys to one girl). Among needs cited were behavior management consultation, respite care, and recreational programs.…

Evaluates two respite programs which offer families temporary relief from caring for elderly relatives: an institutional program for those needing constant nursing attention, and a residential plan for those requiring housekeeping and companion services. Benefits for clients, family, and community appear to be indisputable. (Author/ABB)

A review of the changes in the treatment of and attitudes toward cerebral palsy in the last 30 years is presented. The author stresses the need for early diagnosis and evaluation, day care (especially respite care), counseling, transportation, special living arrangements, and integration of this population. (PHR)

A survey of 190 families caring for people with mental retardation in North Wales addressed caregivers' assessments of unmet needs, particularly respite care needs; the relation between management of dependency and unmet needs; characteristics of families expressing the greatest need for respite care; and implications for policy and practice.…

Parents of 36 autistic children were assessed on child functioning and family stress variables in relation to use of respite care services. Results suggest that parents with more difficult children need and use respite care more than others. Nonusers of respite care reported a higher perception of social support than users. (JDD)

Studied effects of five 12-month support strategy treatments on family caregivers (N=541) of impaired elderly persons. Found caregivers of elderly persons remaining in community reported lower levels of subjective burden. Found services delayed nursing home placement by adult child caregivers but encouraged placement by spouse caregivers.…

Analysis of data on family support services and spending for individuals with developmental disabilities presents information on cash subsidy payments, respite care, and other family support. A graph shows U.S. spending for family support, 1986-1998. Additional tables break down subsidy spending for family support services by state in 1998 and…

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between…

Many families provide lifelong support to their relative with an intellectual disability. However, relatively little information is available for national populations on the characteristics of the people for whom these families care and the supports they receive or need. A database of all persons in receipt of intellectual disability services has…

Transition is a dynamic lifelong process that seeks to meet individual needs as a person with disabilities moves from childhood to adulthood. Per laws in most states, once an individual becomes 18 years of age that person is considered an adult regardless of the level of his or her disability. Initiating planning for adult living activities and…

Purpose: We assess how perceived rewards and problems with caregiving work and supervision relate to intent to leave among direct care workers who are employed in provider organizations participating in the Better Jobs Better Care (BJBC) demonstration; we also examine how these relationships vary by provider type. Design and Methods: Direct care…

This paper reports on a portion of a study on community support and respite for families of children with disabilities in New South Wales (Australia). This part of the study focused on identification of factors influencing families when making decisions about caring for their young child at home or seeking an out-of-home placement. The study used…