Presents features and symptoms of nonconvulsive seizures to aid in early recognition. Provides an observation record suitable for use by school staff and parents to aid in diagnosis and to evaluate the efficacy of medical and social work interventions. Suggests postdiagnostic interventions to help prevent seizure disorders from disabling children.…

As more medically fragile and health-impaired students are included in the educational system, teachers are increasingly likely to confront the death of a student. This article identifies developmental levels of understanding death, factors which affect grieving, and symptoms of grief demonstrated by children and adults. Recommendations for…

Discusses the importance of learning about diabetes and provides a list of ways to obtain this information. Different resources include videos, internet sites, books, cookbooks, and magazines. Provides a detailed list of each of the previous resources and recommends that people with or without diabetes make a concerted effort to educate…

This study compared 29 females with Turner syndrome and 21 females with fragile X syndrome (ages 6-22) on a videotaped role-play interaction with 34 females in a comparison group. Three of eight behavioral measures of social skills differentiated the participant groups. Fragile-X subjects required more time to initiate interactions and Turner…

Analysis of 51 studies of developmental effects of prenatal exposure to alcohol in children from birth to 72 months found that, although adverse outcomes were found within each domain, age grouping, and exposure category, they comprised fewer than 50% of all outcomes measured. Most adverse outcomes were found in the neurobehavioral domain with…

Describes the Transition-to-Kindergarten program in Brookline, Massachusetts, in which two children with asthma and potentially life-threatening food allergies were helped to stay healthy and fit into the classroom. (BB)

Many children with HIV infection are now surviving into later childhood and entering public schools. Most have some degree of disability and neurodevelopmental abnormality and require special educational assistance. Ongoing collaboration among health, education, and social services is necessary to provide them with a full range of services. (SM)

Usher syndrome, Type I, requires multiple adaptations throughout the life cycle because each stage of life has tasks and losses associated with deafness and progressive retinitis pigmentosa. This article examines the issues raised at each stage, using clinical vignettes from persons who have this condition and their families. (Author/DB)

This article highlights the complexity of and critical need for service coordination for medically fragile infants and their families through an in-depth case study of a child and his family who "slipped through the cracks" of the system. The retrospective analysis describes problems and suggests alternative strategies for more effective…

This examination of the successful community placement of 15 medically fragile individuals with profound mental retardation and complex epilepsy found that simplification of anticonvulsants, early intervention for seizures, and improved staff education resulted in fewer seizures, decreases in emergency room visits for status seizures and…

Discusses the provision of services to students who are ventilator-dependent. It provides an overview of legislation governing the education of students with disabilities, the health-care needs of students who are ventilator-dependent, position statements of nursing boards, rulings in recent cases, and suggestions for cost containment. (Author/CR)

Describes a collaborative shared-reading project associated with an early-intervention program which provided pediatric day health care for young children identified as medically and/or environmentally at-risk. Consumer-oriented outcome data suggested that the project was effective in both empowering the caregivers as facilitators of emergent…

Earlier diagnosis and more effective treatments have improved both morbidity and mortality associated with cystic fibrosis, making regular school attendance a reality. School nurses have a unique opportunity to assist students with cystic fibrosis successfully manage their disease. Medical treatment for cystic fibrosis can be complex, leaving…

The Terri Schiavo case was unique in the media attention it garnered, but the decision making challenges faced by Terri's family are common ones encountered by all families who must make choices about the use of life-sustaining medical treatment for an incapacitated loved one. This article highlights three key issues that were particularly…

This monograph represents the collective thinking of parents of children with special health needs, family members, and professionals concerning what is necessary and important in collaborative relationships. Collaboration is viewed as a way to improve quality of life and health of children and their families, by working together to humanize the…