Purpose: Sickle cell disease (SCD) is a genetic blood disorder that increases the risk for recurrent painful episodes. Parents' knowledge regarding SCD management is poor, leading to poor symptom management and lower Health Related Quality of Life (HRQOL) in children with SCD. The purpose of this study was to examine the effects of a parent…

Background: Social and environmental participation endeavors are theorized to shape one's general satisfaction with the overall employment situation facing people with MS. Objective: Responding to a national survey of the employment concerns of Americans with multiple sclerosis (MS), this study examined the extent to which factors at the…

This hermeneutic phenomenological study investigated the lived experiences of 12 Chicana/o students who completed a baccalaureate degree at a majority school. The strategies and experiences that Chicana/os used in persisting through a majority college environment were examined. Theoretically, cultural code-switching is considered as a strategy…

Although inflammatory bowel disease (IBD) affects patients' psychological well-being, previous educational programs have failed to demonstrate effects on psychosocial outcomes and quality of life. Therefore, we developed a group-based psychoeducational program that combined provision of both medical information and psychological self-management…

On the one hand, the relevance of the studied issue is determined by growing lag of rural territorial units in socioeconomic development, and one the other by their significance in such important aspects of the country, as ensuring food supply security, preservation of the available land, production, ecological, demographic and human potential.…

Background: People with severe and profound intellectual disabilities often spend substantial time isolated and disengaged. The nature and quality of the support appears to be important in determining quality of life. Methods: Structured observations and staff questionnaires were used to explore the quality of life and quality of support for 110…

We present findings from a pilot implementation of the Extension Wellness Ambassador Program, a health-focused master volunteer program, and briefly describe the program approach and purpose. Program participants received 40 hr of training and completed assessments of self-efficacy, physical activity, and functional fitness at baseline and 3-month…

Purpose: To investigate the need for sexuality education for individuals with adult onset physical disabilities as it relates to quality of life and to identify current trends in the provision of sexuality education by health care providers relating to quality of care. Data Sources: Literature review from January 1986 to December 2016. Study…

Background: Dissatisfaction with the inflexibility of the group home model has led to the growth of supported living that separates housing from support and is thought to have greater potential for better quality of life outcomes. Comparative studies have had mixed findings with some showing few differences, other than greater choice in supported…

The purpose of this study was to describe how frontline student service professionals in Western Canadian higher education describe their personal engagement at work, through the lens of Kahn's (1990) theory of employee engagement and psychological dimensions of meaningfulness, safety, and availability. It was motivated by the prospect that…

The transition from higher education to the labour market is considered an important and uncertain life stage wherein young adults exchange an academic environment for an often-chaotic entry into the labour market. Specifically, for graduates with a lower socioeconomic status (SES), this transition involves several difficulties. Investigating…

Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…

Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all,…

Since the beginning of the COVID-19 pandemic, faculty members have faced a changed and challenging environment. They were faced with reallocating their time across various teaching, research, and service responsibilities; adjusting their teaching format, testing, and labs; and dealing with reduced access to the resources they needed to teach…

Applied behavior analysis (ABA) services can improve the quality of life for individuals with autism spectrum disorder (ASD). However, not all children receive services based in ABA. The disconnect between available services and accessing services may be the result of families experiencing barriers. Online parent training addresses many of these…