ERIC Number: EJ1392261
Record Type: Journal
Publication Date: 2023-Oct
Pages: 16
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: EISSN-1573-3432
Available Date: N/A
Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to Their Child
Almog, Nitsan; Kassel, Orit; Levy, Nili; Gabai, Tamir
Journal of Autism and Developmental Disorders, v53 n10 p4060-4075 Oct 2023
The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article presents an analysis of a focus group and an online survey conducted with parents. The analysis produced a model that maps parents' dilemmas regarding diagnosis disclosure to their child. The dilemmas, found to be complex and interconnected, concern the invisible nature of autism, the word autism and stigma, time motif, child's environment, the act of disclosure itself, and the child's personal narrative.
Descriptors: Clinical Diagnosis, Autism Spectrum Disorders, Parent Attitudes, Disclosure, Parent Child Relationship, Parent Surveys, Social Bias, Children, Personal Narratives
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Publication Type: Journal Articles; Reports - Research; Tests/Questionnaires
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A