This document is part of a set of resources to support the marginalized caregivers of children with disabilities with inclusive education, which also includes guides for caregivers, teachers and schools, as well as templates for directories of resources and organizations to be adapted for specific systems. This workbook contains tools to be used…

The increase in the prevalence of autism to 1 in 44 children born in the U.S. (Maenner et al., 2021) coupled with the nation's growing immigrant population led to this study's investigation of the influence of homeland culture on lived experiences of five first-generation immigrant parents caring for children with autism. This empirical…

Clinicians' beliefs about an intervention's fit with an individual family influence whether they use it with that family. The factors that influence clinicians' decisions to implement evidence-based practices for young autistic children have yet to be evaluated systematically. These factors may partially account for the significant disparities in…

We explored the association between caregiving for preschool children with developmental disabilities and maternal health and healthcare use using linked primary care and Born in Bradford birth cohort data. Adjusting for prenatal health, healthcare use and socioeconomic status, mothers who were caregivers were more likely than other mothers to…

This case study highlights the methodological and practical implications of modifying an investigation with community partners to fit an online format. Research interactions took place between November 2020 and June 2021, under the social distancing restrictions imposed by the COVID-19 pandemic. Twelve Latinx parents/caregivers participated in…

This article explores how the perception of increasing professionalism of home health-care influences caregivers' experienced work engagement. A qualitative study including 24 interviews, 85 hours of observations and the think-aloud technique was applied in three Danish caregiving organizations. Using a consensual qualitative research approach,…

Existing research has found that home visiting programs for families with young children can improve children's development and strengthen caregivers' and families' well-being. However, the pandemic created numerous challenges for home visiting programs, forcing them to deliver services online or in a hybrid format and to adapt the content of…

First 5 Los Angeles County partnered with the Center for the Study of Child Care Employment (CSCCE) to explore the state of child care centers and family child care (FCC) providers. As part of the California Early Care and Education Workforce Study, CSCCE conducted surveys in 2020 and 2023 to measure both individual- and site-level factors. In…

Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this…

Background: Friendship is important to quality of life, yet people with intellectual disability have more restricted social networks and fewer friends outside family and support staff. Method: Data from a nationally representative longitudinal study of older adults with intellectual disability (aged >40) examined rates and types of friends.…

This article explores emerging findings in a sensory ethnography based in a nursery setting where video data has been co-produced with parents, practitioners and 2-year-old children. The project mobilises Froebel's twin concepts of 'unfoldment' and 'self-activity', reinstating the importance of the sensory-motor register as a form of knowledge…

Communities of Practice (CoPs) are a powerful strategy for supporting knowledge sharing amongst members working in a common field. Information, knowledge and evidence in the field of older adult healthcare and aging have grown exponentially over the past decade. This study reports results from a secondary qualitative analysis of ethnographic data…

The Caregiver Reported Early Development Instruments (CREDI) are assessments tools for measuring the development of children under age three in global contexts. The present study describes the construction and psychometric properties of the motor, cognitive, language, and socio-emotional subscales from the CREDI's long form. Multidimensional item…

"Transition of care" is defined as the movement of an individual from one setting of care to another and involves communicating with appropriate out-of-camp stakeholders such as parents, teachers, and community health care providers to identify youth needs (before camp) and outcomes achieved (after camp) so desired health goals may be…

This descriptive study included a systematic examination of provider and caregiver reflective conversations during caregiver coaching sessions focused on embedded intervention. Transcribed videos from 31 provider-caregiver dyads in two groups (Embedded Practices and Interventions with Caregivers [EPIC] vs. business-as-usual [BAU]) were used for…