The consent process for publication of clinical images in medical journals varies widely. The extent of this variation is not known. It is also not known whether journals follow their own stated best practices or the guidance of the International Committee of Medical Journal Editors (ICMJE). We assessed consent requirements in a sample of 10 top…

Experiential activities are a powerful pedagogical tool that have grown in popularity. But there are a series of ethical issues (the "shadow side") that such activities raises. These include (a) inadequate (informed) student choice, (b) bias in what is covered, (c) lack of adequate debriefing, (d) personal exposure in class and…

Internet and social media research has created new methodological opportunities for educational and social sciences, but also new ethical challenges. In many ways, current research ethics guidelines and legislation are still limited and provisional. In this chapter, we address ethical considerations emerging from a research project based on a…

The main purpose of this qualitative study is to identify the lived experiences of academicians working in the field of educational administration in Turkey with regard to obtaining permission for scientific research in educational institutions and examine it within the context of academic freedom and ethics. A case-study approach was used to…

Individuals who register as body donors do so for various reasons, with aiding medical science a common motivation. Despite awareness of several key reasons for donation, there are few in-depth explorations of these motivations to contextualize persons' reasons for donating. This study undertakes a mixed-method exploration of motivations for body…

A non-inferiority design accepts the possibility of some efficacy loss, as part of a "successful", statistically significant result. That loss may be excessive when the non-inferiority threshold is lenient. However, even stringent significance thresholds and safety monitoring may fail to adequately protect study participants when the…

This study constitutes the first longitudinal exploration of consent to link survey and administrative data. It examines variations in consent over time and explores the influence of the respondents' characteristics (both observed and latent) and the impact of the interviewers on consent co-operation. Respondent inclination to consent is modelled…

There has been growing enthusiasm amongst those who undertake research with children, for the development of participatory and visual research methods. The greater availability and affordability of digital technology (such as digital cameras, tablets and smart phones) has meant that there has been greater scope for digital technology to support…

As a non-participant observer of a Teaching and Learning Research Initiative (TLRI) on children's storytelling, I explored children's understanding of research involving them, including their rights to consent, assent and dissent to participate. In this case study of Timmy's participation in research, I show how Timmy's researcher sought and…

Drawing on the author's experience carrying out qualitative research in the field of occupational therapy with people with intellectual disabilities, this article explores ethical issues inherent in ethnographic and case study research, where study designs can evolve over time. Such qualitative methodologies can enable deep understanding of…

In June 2014, a paper reporting the results of a study into 'emotional contagion' on Facebook was published. This research has already attracted a great deal of criticism for problems surrounding informed consent. While most of this criticism is justified, other relevant consent issues have gone unremarked, and the study has several other ethical…

Background: Africa is increasingly becoming an important region for health research, mainly due to its heavy burden of disease, socioeconomic challenges, and inadequate health facilities. Regulatory capacities, in terms of ethical review processes, are also generally weak. The ethical assessment of social and behavioral research is relatively…

Correspondence testing to research discrimination in the marketplace has become common and the use of internet applications has allowed researchers to send greater numbers of applications. While questions of research ethics always arise when planning a correspondence test, the issue receives relatively little attention in published correspondence…

Non-consensual sterilization is one of the characteristic historical abuses that took place mainly in the first half of the 20th century. People with intellectual disability (ID) were a prime target as part of the ideology of negative eugenics. In certain jurisdictions, laws were in force for several decades that permitted sterilization without…

Our current federal postsecondary data system is incomplete and fails to provide today's students with the accurate, timely information that they need to inform their college choices and promote their success. As policymakers consider proposals to improve this federal data system, it is critical that they work in tandem to protect students'…