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Direct linkTess Levy; Cristan Farmer; Siddharth Srivastava; Kristina Johnson; Jadyn Trayvick; Camille Brune; Alexandra Massa; Hailey Silver; Paige M. Siper; Jessica Zweifach; Danielle Halpern; Jennifer H. Foss-Feig; Jonathan A. Bernstein; Elizabeth Berry-Kravis; Craig M. Powell; Mustafa Sahin; Latha Valluripalli Soorya; Audrey Thurm; Joseph D. Buxbaum; Alexander Kolevzon – American Journal on Intellectual and Developmental Disabilities, 2025
The clinical spectrum of Phelan-McDermid syndrome (PMS) is varied, with wide-ranging degrees of intellectual disability, developmental delays, behavioral abnormalities, and medical features. Different types of genetic variation lead to PMS, and differing genotypes (e.g., size of deletion or type of variant) account for some of this variability,…
Descriptors: Genetics, Genetic Disorders, Intellectual Disability, Developmental Delays
Download full textCate Weir; Chelsea VanHorn Stinnett; Matthew L. McClellan; Belkis Choiseul-Praslin – Institute for Community Inclusion, 2025
Postsecondary education (PSE) programs for students with intellectual disability should be built around a course of study leading to a meaningful credential. Typically, programs award a non-degree credential available only to students who are attending the program. In addition to or instead of these program-specific credentials, students in these…
Descriptors: Postsecondary Education, Students with Disabilities, Intellectual Disability, Credentials
Yu-Fen Yen; Pei-Yun Sun; Pei-Fang Tsai; Yen-Chin Chen; Sheng-Hsiang Lin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Oral opportunistic bacteria pose health risks for people with intellectual disability, yet their relationship with activities of daily living (ADLs) remains underexplored. Methods: We conducted a cross-sectional study of 178 institutionalised people with intellectual disability. ADL was assessed by caregivers. Oral samples were…
Descriptors: Intellectual Disability, Microbiology, Institutionalized Persons, Dental Health
Bidaurrazaga-Letona, Iraia; Diz, José Carlos; Torres-Unda, Jon; Esain, Izaro; Monasterio, Xabier; Zulueta, Biotz; Ayán, Carlos – Journal of Intellectual & Developmental Disability, 2023
Background: People with intellectual disability have poor balance skills and greater fall risk. The Short Physical Performance Battery (SPPB) provides comprehensive information on functional status and can predict fall risk. However, the reliability and validity of the SPPB have not been evaluated in people with intellectual disability. Methods:…
Descriptors: Mild Intellectual Disability, Moderate Intellectual Disability, Test Reliability, Test Validity
Alice N. Williams – Journal of Special Education, 2025
For students with moderate and severe intellectual disability (ID), reading instruction has focused on teaching sight words. However, research supports a shift in focusing instruction on reading skills such as phonemic awareness, phonics, and fluency. The purpose of this systematic literature review was to focus on the research completed with…
Descriptors: Reading Instruction, Intervention, Students with Disabilities, Moderate Intellectual Disability
Andrew Jahoda; Dave Dagnan; Richard Hastings; Amanda Gillooly; Jenny Miller; Susie Baines; Chris Hatton – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with severe to profound intellectual disabilities experience similar or higher levels of depression than those with more mild intellectual disabilities. Yet, there is an absence of evidence about how to adapt existing psychological therapies for this population. Method: A behavioural activation intervention (BeatIt) for people…
Descriptors: Intellectual Disability, Severe Intellectual Disability, Depression (Psychology), Intervention
Yasmine Dunn; S. J. Summers; Dave Dagnan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Endings in therapy are discussed widely in mainstream literature, however, there is only a small amount of research that considers endings in therapy for people with intellectual disabilities. Methods: Eight therapists were interviewed about their experience of ending therapy with people with intellectual disabilities. Interviews were…
Descriptors: Intellectual Disability, Experience, Change, Psychotherapy
Cuskelly, Monica; Moni, Karen; McMahon, Mary; Jobling, Anne; Lloyd, Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Person-centred service delivery underpins current approaches to working with individuals with intellectual disabilities. We investigated views of staff from a service organisation regarding their roles in creating desired futures for adults with intellectual disabilities. Methods: Data were gathered from staff of a large organisation…
Descriptors: Intellectual Disability, Employees, Role, Readiness
Sophie C. Westrop; Laura Maenhout; Craig A. Melville; Arlene M. McGarty – Journal of Applied Research in Intellectual Disabilities, 2024
Background: There is a paucity of theory-informed physical activity research with adults with intellectual disabilities. This study aimed to address this by synthesising existing literature and applying the COM-B model to understand capabilities, opportunities and motivations. Methods: A qualitative evidence synthesis was conducted and reported in…
Descriptors: Adults, Intellectual Disability, Physical Activities, Opportunities
Cristan Farmer; Aaron J. Kaat; Michael C. Edwards; Luc Lecavalier – American Journal on Intellectual and Developmental Disabilities, 2024
Measurement invariance (MI) is a psychometric property of an instrument indicating the degree to which scores from an instrument are comparable across groups. In recent years, there has been a marked uptick in publications using MI in intellectual and developmental disability (IDD) samples. Our goal here is to provide an overview of why MI is…
Descriptors: Measurement, Psychometrics, Scores, Intellectual Disability
M. L. Eding; M. Meeter; C. Schuengel – Journal of Research in Special Educational Needs, 2025
Education of children with moderate to severe intellectual disabilities requires adequate assessment of their educational needs and potential to learn. Dynamic testing using analogical reasoning tasks may be a promising way to perform such an assessment. However, it remains unclear how dynamic testing with these children may be done in practice.…
Descriptors: Delphi Technique, Moderate Intellectual Disability, Severe Intellectual Disability, Foreign Countries
Özlem Altindag Kumas; Senay Delimehmet Dada; Halime Miray Sümer Dodur – Journal of Computer Assisted Learning, 2025
Background: Phonological awareness is the ability to identify and manipulate the sounds of language. This is a crucial skill for reading and spelling development. However, students with intellectual disabilities (ID) often have difficulties in acquiring phonological awareness skills. Objectives: This study aimed to assess the impact of a digital…
Descriptors: Phonological Awareness, Students with Disabilities, Game Based Learning, Video Games
Beth Tarleton; Katy Burch – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This paper recognises that there has been a long history of research into support for parents with intellectual disabilities in England and a helpful approach to integrating adults with intellectual disabilities in society called "Valuing People." This focus has now faded. Method: The paper draws together findings from three…
Descriptors: Parents with Disabilities, Intellectual Disability, Adults, Social Services
Andrew Joyce; Perri Campbell; Joanne Qian-Khoo; Jenny Crosbie; Erin Wilson – Journal of Intellectual & Developmental Disability, 2025
Background: People with an intellectual disability prefer more choice with employment options and more community facing roles rather than just traditional supported employment roles. However, data reveal that transition rates from supported to open employment in Australia remain very low and these findings are also found internationally. Method:…
Descriptors: Intellectual Disability, Employment Opportunities, Policy, Barriers
Verity Chester; Medha Cherukat; Nicholas Smith; Elizabeth Patteril; Indermeet Sawhney; Asif Zia; Regi Alexander – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Hypothyroidism is a chronic health condition which causes physical, cognitive and psychiatric symptoms. The prevalence of hypothyroidism in adults with intellectual disabilities is under researched. Method: Hypothyroidism was examined among 463 patients within an outpatient intellectual disability psychiatric team. Clinic records…
Descriptors: Intellectual Disability, Physiology, Metabolism, Adults
