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Peer reviewed
Direct linkSandra Marquis; N. Esmé Marquis; Yona Lunsky; Kimberlyn M. McGrail; Jennifer Baumbusch – Journal of Autism and Developmental Disorders, 2025
Purpose: The purpose of this study was to compare antipsychotic use by youth with intellectual/developmental disabilities to youth without IDD as they transitioned from pediatric to adult health care services. In addition, antipsychotic use was compared between youth with different types of IDD (autism, Fetal Alcohol Syndrome, Down syndrome and…
Descriptors: Drug Therapy, Intellectual Disability, Developmental Disabilities, Autism Spectrum Disorders
Jenny Sperling – Intellectual and Developmental Disabilities, 2025
By amplifying the voices of young college women with intellectual and developmental disabilities, this study explores the intersections of disability, gender, sexuality, and higher education. It highlights how maternal socialization shapes their sexual knowledge prior to college, revealing that mothers often leave their daughters misinformed,…
Descriptors: College Students, Females, Students with Disabilities, Mothers
Katherine E. Reuben; Jalayne J. Arias; Shannon Self-Brown; Erin Vinoski Thomas – Journal of Autism and Developmental Disorders, 2025
Autistic individuals with higher support needs, including those with co-occurring intellectual disability (ID) and language impairment (LI), are underrepresented in research. Researchers who attempt to include this population face unique challenges regarding participant recruitment, informed consent, accurate measurement, and protecting privacy…
Descriptors: Inclusion, Autism Spectrum Disorders, Intellectual Disability, Language Impairments
Adam Pitt; Suzanne Hodge – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Breast cancer is as frequent in women with intellectual disabilities as the general population, but the mammography uptake rate for women with intellectual disabilities is almost a third lower. This meta-synthesis aimed to explore physical and psychosocial barriers to mammography access for women with intellectual disabilities from the…
Descriptors: Cancer, Females, Access to Health Care, Intellectual Disability
Cristan Farmer; Audrey Thurm; Tanvi Das; E. Martina Bebin; Jonathan A. Bernstein; Elizabeth Berry-Kravis; Joseph D. Buxbaum; Charis Eng; Thomas Frazier; Antonio Y. Hardan; Alexander Kolevzon; Darcy A. Krueger; Julian A. Martinez-Agosto; Hope Northrup; Craig M. Powell; Latha Valluripalli Soorya; Joyce Y. Wu; Mustafa Sahin – American Journal on Intellectual and Developmental Disabilities, 2025
Developmental domains, such as cognitive, language, and motor, are key concepts of interest in longitudinal studies of intellectual and developmental disabilities (IDD). Normative scores (e.g., IQ) are often used to operationalize performance on standardized tests of these concepts, but it is the interval-distributed person-ability scores that are…
Descriptors: Cognitive Tests, Intelligence Tests, Cognitive Ability, Intellectual Disability
Latha Valluripalli Soorya; Camille W. Brune; Cristan A. Farmer; Edith V. Ocampo; Natalie I. Berger; Deborah A. Pearson; Robyn M. Busch; Patricia Klaas; Paige Siper; Kristn Currans; Amanda C. Gulsrud; Jennifer M. Phillips; Rajna Filip-Dhima; Sarah E. O’Kelley; Thomas W. Frazier; Tess Levy; Allison L. Wainer; Joseph D. Buxbaum; Craig M. Powell; Jonathan A. Bernstein; Simon K. Warfield; Darcy A. Krueger; E. Martina Bebin; Hope Northrup; Shafali S. Jeste; Alexander Kolevzon; Elizabeth Berry-Kravis; Mustafa Sahin; Siddharth Srivastava; Audrey Thurm – American Journal on Intellectual and Developmental Disabilities, 2025
The Developmental Synaptopathies Consortium is a multisite natural history network studying rare, neurogenetic syndromes associated with synaptic dysfunction and developmental delays. One aim of the Consortium is clinical trial readiness, including identifying clinical concepts and validating their measurement. We evaluated the scope and…
Descriptors: Intellectual Disability, Genetic Disorders, Neurological Impairments, Measurement Techniques
David Lobato; Francisco Montesinos; Eduardo Polín; Juan Miguel Flujas-Contreras; Inmaculada Gómez-Becerra; Lidia Budziszewska – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parenting children with neurodevelopmental disorders and intellectual disabilities is associated with psychological and health problems in parents. It is also related to authoritarian and inflexible parenting, hindering the psychological adjustment of diagnosed children. Contextual therapies are developing a promising line of…
Descriptors: Neurodevelopmental Disorders, Intellectual Disability, Child Rearing, Mental Health
Shasvine Viknesh; Farahiyah Wan Yunus; Masne Kadar; Nor Afifi Razaob – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Children with mild intellectual disabilities in Malaysia often lack structured, tailored sexuality education. Existing national resources are broad and not diagnosis-specific. This study developed and validated sexuality education guidelines and an activity kit for parents of children aged 4-12 years with mild intellectual…
Descriptors: Foreign Countries, Mild Intellectual Disability, Sex Education, Students with Disabilities
Rafi, Faiza; Maricle, Denise E. – Communique, 2023
Down syndrome is one of the leading causes of intellectual disability, and individuals with Down syndrome experience various health issues including learning and memory deficits, congenital heart diseases, Alzheimer's or other dementias, leukemia, cancers, and Hirschsprung disease. School psychologists have a vital role in the success of students…
Descriptors: School Psychologists, School Psychology, Down Syndrome, Students with Disabilities
Deb, Shoumitro; Limbu, Bharati; Nancarrow, Tom; Gerrard, David; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…
Descriptors: Foreign Countries, Psychiatry, Experience, Adults
Hord, Casey – Support for Learning, 2023
The author briefly reviews studies on the math teaching of secondary school students with mild intellectual disabilities. Then, the author demonstrates ways to teach secondary-level mathematics to students with mild intellectual disabilities. In this article, readers will learn about how to use manipulatives, diagrams, and gestures to support…
Descriptors: Middle School Teachers, High School Teachers, Mathematics Teachers, Mild Intellectual Disability
Carey, Eileen; Foran, Sinéad; Burke, Geraldine; Ryan, Judy – British Journal of Learning Disabilities, 2023
Background: Globally there are few countries facilitating undergraduate programmes to train nurses specifically to support people with intellectual disabilities. In Ireland, eight Higher Education Institutions (HEIs) in partnership with associated health care providers (AHCPs) facilitate undergraduate Nursing (Intellectual Disability) degree…
Descriptors: Foreign Countries, Undergraduate Study, Nursing Education, Nurses
Benedetto, Valerio; Filipe, Luis; Harris, Catherine; Tahir, Naheed; Doherty, Alison; Clegg, Andrew – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Mainstream economic evaluations methods may not be appropriate to capture the range of effects triggered by interventions for people with intellectual disabilities. In this systematic review, we aimed to identify, assess and synthesise the arguments in the literature on how the effects of interventions for people with intellectual…
Descriptors: Program Evaluation, Cost Effectiveness, Program Costs, Intervention
Boeije, Hennie; Leemrijse, Chantal; Zonneveld, Ellen; Schelven, Femke – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Family carers of people with an intellectual disability sometimes need to transfer their caregiving tasks for example because of illness or ageing. We examined carers' experiences with long-term care planning and the impact of the COVID-19 pandemic on their intentions to engage in long-term planning in the Netherlands. Method:…
Descriptors: Caregivers, Family (Sociological Unit), Intellectual Disability, Health Services
Smit, Manon J.; Emck, Claudia; Scheffers, Mia; van Busschbach, Jooske T.; Beek, Peter J. – Journal of Intellectual & Developmental Disability, 2023
Background: Research is lacking on body-related consequences of sexual abuse in adults with mild intellectual disability or borderline intellectual functioning (MID-BIF), although the prevalence of abuse is high and body- and movement-oriented diagnostics and therapeutics seem warranted for this group. Method: Body experience in adults with…
Descriptors: Sexual Abuse, Adults, Mild Intellectual Disability, Human Body
