This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The main focus of this manual is to provide easy-to-read…

Facilitating the learning and participation of pupils with Asperger syndrome and high-functioning autism (herein referred to as AS) in mainstream schools is complex and poorly understood. We report on a small-scale qualitative study of the views and experiences of 20 such pupils drawn from four secondary schools in north-west England. Data were…

Background: Melatonin is used to treat sleep disorders in both children and adults with intellectual disability (ID), although it has no product license for such use. The evidence for its efficacy, potential adverse effects and drug interactions are reviewed in the context of prescribing to people with ID. Methods: A literature search was…

Management of psychosocial aspects of Prader-Willi syndrome is considered for several quality of life issues, including social change, increased life expectancy, parent stress, child stress, independence, residential options, and access to services. (JDD)

This paper comments on three preceding papers in the same publication on the general topic of self-determination for adults with severe disabilities. Self-determination is discussed as a movement requiring major changes in culture, values, and support in the general direction of partnership and inclusion, including a more accessible approach to…

Background: Research shows that many families initially oppose relocation from institutions to community care, but also that a majority change their mind after resettlement. The paper addresses the question of whether this post-resettlement preference for community services is only short-term or likely to last. Method: Data were gathered at three…

Background: Adults with foetal alcohol spectrum disorder (FASD) require support to be part of the community; however, most have few supports other than family and friends. The purpose of this study was to assess caregiver perceptions of community integration of adults with FASD living in British Columbia. Method: The Assimilation, Integration,…

Previous research into deinstitutionalization has largely ignored the perspective of people with intellectual disabilities, especially those with severe intellectual disabilities. This research aimed first to understand how women with severe intellectual disabilities experienced transition from a locked ward of an old long-stay hospital into other…

Discussion of social role valorization theory in the context of normalization of people with disabilities focuses on the relation between social roles and consequences. Value systems such as religion are needed to determine whether and why other humans should be valued or devalued and which means to this end are morally defensible or imperative.…

This paper comments on three preceding papers in the same publication on the general topic of self-determination for adults with severe disabilities. The author views them as competing ideologies and puts forth guidelines for evaluating any such set. The difficulty of effectively assessing the preferences of individuals with severe disabilities is…

The longitudinal status of supported employment in Finland was examined via a 2003 nationwide survey sent to job coaches involved in supporting workers with intellectual and other disabilities. Sustained supported employment, defined as "paid work in integrated settings with ongoing supports that contained at least two on-site visits per…

Parents of 82 children with disabilities and 132 children without disabilities, ages 2 through 5, completed questionnaires that assessed frequency of child participation in age-appropriate community activities and the parental experience of introducing the child to community settings. Overall, parents of children with disabilities reported…

While there is extensive evidence on the overall benefits of deinstitutionalisation, the move from institutional care to providing accommodation and support in small to medium sized dispersed housing schemes has not gone uncontested. Recently, a number of commentators have argued for the development of cluster housing on the basis that it may…

In this article, the author talks about Everton Football Club's Football in the Community programme, a disability football programme in the UK that helps disabled people come out of their shells and play an active role in life. Everton's disability football programme is about getting disabled people in, giving them help in moving on to take…

Fifteen parents and two grandparents of children with developmental disabilities (DD) were interviewed to discover common themes regarding specific ways in which they devised positive adaptations to their everyday routines to accommodate the needs of their children with DD, how they decided upon the accommodations, and how much help they felt they…