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Wessels, Marleen D.; Paap, Muirne C. S.; Van der Putten, Annette A. J. – Journal of Intellectual & Developmental Disability, 2021
Background: Research about the psychometric properties of the Behavioural Appraisal Scales (BAS) in people with profound intellectual and multiple disabilities (PIMD) is limited. This study evaluates invariance in factor structure, item bias and convergent validity of the BAS. Methods: Data on the BAS from two studies (n = 25; n = 52) were…
Descriptors: Test Validity, Ability Identification, Severe Intellectual Disability, Multiple Disabilities
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Hinchcliffe, Vivian – Support for Learning, 2022
The Rochford Review heralded new arrangements for statutory assessment for children with SLD and PMLD working below the national curriculum standard. New assessment arrangements, the pre-key stage standards and the engagement model, relate to two groups of pupils: pupils 'not yet engaged' and pupils 'engaged' in subject-specific study. This…
Descriptors: Severe Intellectual Disability, Students with Disabilities, Academic Standards, Student Evaluation
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Rushton, Rosie; Kossyvaki, Lila; Terlektsi, Emmanouela – Journal of Intellectual Disabilities, 2023
Music is motivational, accessible and engaging for individuals with learning disabilities. Several systematic reviews have addressed the effects of music activity on people with learning disabilities; however, none has specifically reviewed the use of musical activity with people with profound and multiple learning disabilities. This review aimed…
Descriptors: Music, Evidence Based Practice, Music Activities, Program Effectiveness
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Danker, Joanne; Dreyfus, Shoshana; Strnadová, Iva; Pilkinton, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with severe/profound intellectual disability typically face poor communication outcomes as they are often nonverbal and need their supporters to provide for their communication needs. This review aimed to identify studies focused on the communication resources people with severe/profound intellectual disability use for…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Barriers, Affordances
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Van der Mescht, Pauli; Geertsema, Salome; le Roux, Mia; Graham, Marien A.; Johnson, Ensa – South African Journal of Childhood Education, 2023
Background: Physical, financial, social and emotional demands placed on caregivers caring for their children with severe intellectual disabilities (CWSID) could lead to high levels of burden. Aim: This study aimed to evaluate the potential level of burden experienced by South African caregivers and aimed to identify possible contributing risk…
Descriptors: Foreign Countries, Child Rearing, Severe Intellectual Disability, Caregiver Role
Robert Garcia – ProQuest LLC, 2023
Virtual Reality is an emerging technology that has not been widely adapted to teach science concepts to students with significant cognitive disabilities (SCD) in part due to teachers' lack of understanding and technical competence. This narrative case study aimed to recount the experiences of teachers of students with SCD as they engage in…
Descriptors: Computer Simulation, Severe Intellectual Disability, Science Instruction, Students with Disabilities
Penelope B. Velasco – ProQuest LLC, 2023
This qualitative phenomenological study focused on determining and describing teachers' lived experiences in implementing inclusion for students with significant cognitive disabilities. Inclusion as an educational practice entails that special education students are provided access to the general education curriculum. While progress has been noted…
Descriptors: Inclusion, Students with Disabilities, Intellectual Disability, Regular and Special Education Relationship
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Maes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
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Doyle, Carmel – Journal of Intellectual Disabilities, 2022
A purposeful sample of 15 mothers of children with severe and profound intellectual disabilities participated in this hermeneutic phenomenological study through interviews and completion of a diary. The aim of the study was to explore mothers' lived experience of 'giving medicines' to children with severe and profound intellectual disabilities.…
Descriptors: Severe Intellectual Disability, Mothers, Drug Therapy, Children
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MacGregor, Laura – Journal of Intellectual Disabilities, 2022
The risk of viral infection during the COVID-19 pandemic has caused many hospitals to prohibit all patient visitors, including family caregivers for people with intellectual disabilities. Drawing on a postmodern, intersubjective view of the body, as well as my experience as the mother of a young adult with profound disabilities, I argue that…
Descriptors: Mothers, Severe Intellectual Disability, Parent Attitudes, Caregivers
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Delany, C.; Diocera, M.; Lewin, J. – Journal of Intellectual & Developmental Disability, 2023
Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe…
Descriptors: Intellectual Disability, Cancer, Barriers, Access to Health Care
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Johnson, Khalilah R.; Bagatell, Nancy – Journal of Intellectual Disabilities, 2020
Institutionalized adults with profound intellectual disabilities (ID) face significant challenges to having their choice-making cultivated and supported. Based on observational and interview data from an institutional ethnographic study, this article explores how choice-making during mealtimes is acknowledged and problematized by staff. First, we…
Descriptors: Institutionalized Persons, Adults, Severe Intellectual Disability, Participation
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Overwijk, Annelies; van der Putten, Annette A. J.; van der Schans, Cees P.; Willems, Mariël; Hilgenkamp, Thessa I. M.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people with intellectual disabilities. The aim of this study is to determine whether and which BCTs are used by direct support professionals (DSPs) for supporting healthy lifestyle behaviour of people with moderate to profound intellectual…
Descriptors: Behavior Modification, Behavior Change, Health Promotion, Moderate Intellectual Disability
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van Alphen, Helena J. M.; Waninge, Aly; Minnaert, Alexander E. M. G.; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Valid measures to assess either small or assisted performed movements of people with profound intellectual and multiple disabilities (PIMD) are required. We analysed the construct validity of the Actiwatch-2 to assess movement in people with PIMD. Method: Twenty-two persons with PIMD were video recorded while wearing an Actiwatch-2. We…
Descriptors: Construct Validity, Measurement Equipment, Motion, Severe Intellectual Disability
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B. W. Masondo; N. P. M. Mabaso – Interchange: A Quarterly Review of Education, 2025
Almost two decades later since the promulgation of the White Paper 6 on inclusive education policy in South Africa, the nation has yet to attain what the policy provided as practical inclusion guidelines within the education fraternity. Parental involvement is one of the guidelines that continue to be highlighted as an area of development in the…
Descriptors: Severe Intellectual Disability, Students with Disabilities, Partnerships in Education, Inclusion
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